1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Prof Kenny de Meirleir's treatment

Discussion in 'ME/CFS Doctors' started by janeinmelbourne, Aug 8, 2009.

  1. Is anyone either a patient of Kenny's or following his treatment ideas? I am a new patient of his and about to start with some of his recommendations for treatment. I'd love to hear others' experiences with this.

    Jane
  2. Jody

    Jody Senior Member

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    Canada
  3. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Tony and Beady. Get some more patients here and we'll either open up a forum devoted to his ideas or a group. We've been thinking about doing it. :D
  4. Tony

    Tony Still working on it all..

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    Melbourne, Australia
    We're both spreading the word as we can...:) Hopefully some more will come along.
  5. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Maybe we should just create it and they will come? We're changing alot right now - probably give it a try next week.
  6. Kenny de Meirleir group

    I'd be really interested in joining that, Cort. Thanks a lot!

    Jane
  7. Tony

    Tony Still working on it all..

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    Melbourne, Australia
    Good way to go. If people see a dedicated KDM section and don't have to search it gets my vote..:)

    Eventually we could have one for Peterson, Cheney etc too...At the moment there's discussion under Vistide re Peterson but it's not easy to see unless you're really searching. Many thanks Cort...:)
  8. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    I have learned a lot from Dr Kenny's videos and I wonder if someone could tell me if this group just has an axe to grind or if their complaints are valid. I dont know if Dr Kenny is still taking ME/CFS patients but I was considering consulting with him but if he is not patient centric I don't want to continue down that path (been doing that for years w/ Drs). He sure sounds patient centric in his videos so I was wondering if this group is being political or has a valid complaint

    http://www.ncf-net.org/forum/CallForResignation.htm

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