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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hiif it were true what the prof. Gherardi, I can not explain why various people close to me (family, relatives, friends ..) over time have manifested the same symptoms of mine
I always remain convinced of the viral origin ......
In the video he refers to the fatigue as "profound". It would be interesting to know, like you say, if any of the people affected suffer from PEM..Does this cause post-exertional malaise, orthostatic intolerance, and other traits associated with CFS, such as an underactive parasympathetic nervous system, though? Lots of things cause fatigue and various other symptoms, but very few of them cause the same kinds of symptoms and traits of CFS, and the severity of the fatigue. There isn't any other condition that causes fatigue as severe as that seen in CFS - something a number of studies have indicated.
If you watch the video, you'll see the research shows that the median time for the aluminum lesions to appear at the site of injection is 5 years. The eventual accumulation in the brain is a slow process. But this clearly doesn't happen to everyone who is injected.I've been taking an allergy immunotherapy which contains an aluminum adjuvant. I've had this injected in me monthly for around 2 years now. We are talking about three separate injections (for different allergens, pollens mostly). My immunologist wanted to use non-aluminum versions, however they were in low supply so I opted for the aluminium based option.
My CFS at the same time has gotten better, not worse. Personally, this sounds like another case of finding a vague correlation and touting it as the cause. Correlation doesn't imply causation, right? Over the years, I've heard many theories which just don't stack up. I'm inclined to add this to the pile.
Hi
How many people has this happened to and do they now have what you would call full cfs?
hi @unto then it would seem there must be an infectious origin or something in your house, mould, chemical etc that is causing or triggering these illnesses.
how did your illness begin? what symptoms?
what tests and treatments have you had for infectious agents?