Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Prevention Magazine Article on ME/CFS

Discussion in 'General ME/CFS News' started by Never Give Up, Dec 16, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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  2. *GG*

    *GG* Senior Member

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    Concord, NH
  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    12 Things No One Tells You About Chronic Fatigue Syndrome

    It's good. It's mostly about symptoms, the lack of knowledge and approved treatments, and ends up with Dr. Klimas advising people to learn about their disease and advocate for themselves with their own doctors. Carol Head, Zaher Nahle, and Nancy Klimas quotes make up most of the article. I specially like This:

    ""Apart from profound exhaustion, body painand cognitive issues are common symptoms," says Nancy Klimas, MD, a professor of medicine and immunology at Nova Southeastern University. These cognitive issues aren't simple confusion or memory lapses, Head says. "We're talking people in their 20s and 30s not being able to put a sentence together, or struggling to read a restaurant check," she adds. Problems sleeping, a racing heart, and issues standing up are all related symptoms.", and this:

    "Most doctors don't know much about it.
    "The disease isn't really discussed in the medical curricula, and so it's not well understood by many doctors," Klimas says. "Obviously that can make it tremendously difficult for patients trying to find answers and treatment." Nahle says the Institute of Medicine's recent report recognizing ME/CFS as a disease will help to change that, but the vast majority of sufferers will still struggle to find doctors who know how to spot and treat the disease."
     
    Lyratic, Woolie, Effi and 4 others like this.
  4. SOC

    SOC

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    Good stuff. :thumbsup: This is the kind of thing we've been looking for, including quotes from people knowledgeable about the medical reality of the disease.

    It starts:
    Please click through and give this a lot of traffic.
     
  5. jimells

    jimells Senior Member

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    northern Maine
    It's interesting that the article mentions the IOM report and ignores the new name - a good call by the author.
     

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