May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
Discuss the article on the Forums.

Press Release: Original Analyses Reveal Poor Results of £5M PACE Trial of ‘Exercise Therapy' for CFS

Discussion in 'General ME/CFS News' started by Tom Kindlon, Sep 10, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,377
    Likes:
    8,244
    #MEaction press release available to *journalists* from me:

    ---

    ---

    Journalists can email me for a copy: tom kindlon (all one word) @ gmail dot com.

    Has quotes from (and contact details for):

    Jonathan C.W. Edwards MD (Emeritus Professor of Medicine University College London);
    Keith Geraghty PhD (Honorary Research Fellow in Primary Care Medicine University of Manchester);
    Alem Matthees (Patient and requester of the PACE data under the Freedom of Information Act, Australia) (no contact details given);
    Dr. David Tuller (University of California, Berkeley);
    Simon McGrath (Patient and science-blogger);
    Tom Kindlon (Information Officer, Irish ME/CFS Association)


    Please share

    This message has been posted on

    Facebook: http://goo.gl/7B31kA
    and
    Twitter: http://goo.gl/pmcJUU
     
    Mel9, LisaGoddard, zzz and 21 others like this.
  2. Amused

    Amused

    Messages:
    65
    Likes:
    301
    UK
    Tom - what happens to the released data now. Do you know what Alem Mattees plans to do with it, and how soon we will find out any results based on the original protocol?
     
    trishrhymes likes this.
  3. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,377
    Likes:
    8,244
    Don't know. I know did Alem put in a huge amount of work to win the case and will want to ensure that this effort does not go to waste.
     
    Mel9, trishrhymes, Amused and 6 others like this.
  4. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,377
    Likes:
    8,244
    A group leader was sent a copy to send to journalists (after requesting it).
    They just commented
     
  5. AndyPR

    AndyPR Senior Member

  6. trishrhymes

    trishrhymes Senior Member

    Messages:
    2,153
    Likes:
    17,870
    Well done Tom. You're a star!
     
  7. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,377
    Likes:
    8,244
    Thanks, though I should say I only had limited input into the press release.
     
    Mel9 likes this.
  8. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,377
    Likes:
    8,244
    Mel9, Comet, sarah darwins and 2 others like this.

See more popular forum discussions.

Share This Page