Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Press Release: No ‘Recovery’ in PACE Trial, New Analysis Finds

Discussion in 'General ME/CFS News' started by ClarkEllis, Sep 21, 2016.

  1. ClarkEllis

    ClarkEllis

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    #MEaction press release available to *journalists* from me:

    Journalists can email me for a copy: iamclarkellis @ gmail dot com.

    Has quotes from (and contact details for):
    Alem Matthees (Patient and requester of the PACE data under the Freedom of Information Act, Australia);
    Dr. David Tuller (University of California, Berkeley);
    Bruce Levin (Professor and Past Chair, Department of Biostatistics, Columbia University);
    Jonathan C.W. Edwards MD (Emeritus Professor of Medicine University College London);
    Rebecca Goldin, PhD (Professor of Mathematical Sciences, George Mason University, USA and Director, STATS.org);
    Dr Charles Shepherd (Honorary Medical Adviser, ME Association);
    Zaher Nahle, PhD, MPA (Vice President for Research and Scientific Programs, Solve ME/CFS Initiative);
    Dr Simon John Duffy (Director, Centre for Welfare Reform);
    Carly Maryhew, JD (Patient and co-author of reanalysis paper);
    Tom Kindlon (Information Officer, Irish ME/CFS Association);
    Simon McGrath (Patient and science-blogger);
    Jane Colby (Executive Director, The Young ME Sufferers Trust (Tymes Trust))

    Please share.
    This message has been posted on Twitter: https://goo.gl/uKkrnp
     
    MEMum, rosie26, Webdog and 25 others like this.
  2. Yogi

    Yogi Senior Member

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    Wow sounds very exciting with all those names (even without reading it). Good to see all the fruits of the communities labour being further publicised.

    Another great piece of work by #MEAction and Clark Ellis!!!!

    Really need to get some major news papers publishing this and news channels such as C4 and Dispatches.
     
    MEMum, Webdog, Mrs Sowester and 10 others like this.
  3. trishrhymes

    trishrhymes Senior Member

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    UK
    Heroes one and all. Thank you.
     
    Webdog, Comet, Snowdrop and 5 others like this.
  4. ClarkEllis

    ClarkEllis

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    Thank you Yogi, I agree it's a great piece of work, but I'm just the messenger. Someone else produced the press release, and did a very good job.
     
    Comet, Daisymay, ballard and 6 others like this.
  5. BurnA

    BurnA Senior Member

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    I am curious, how do press releases work - is there method of releasing them or do the journalists have to contact you ( in this case ) or the issuer in general. Tks in any case.
     
  6. Living Dead

    Living Dead Senior Member

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    In general, a press release is published as a news item on the organization's webside, using a name starting with "Press Release". Then journalists pick it up. This seems different.
     
  7. ClarkEllis

    ClarkEllis

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    Press releases are circulated in a number of ways. publishing on an organizations site, press release distribution services, through media companies, social media, word of mouth, contact lists, etc.

    This press release is not only being distributed through social media.
     
    Tom Kindlon, Comet, Daisymay and 2 others like this.
  8. charles shepherd

    charles shepherd Senior Member

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    The press release is being sent to a large number of health journalists, science editors and other media contacts who might be interested in covering this story

    The journalists have the basic facts and quotes from the various experts who are willing to talk to the media

    The press release also contains our direct contact details if more info is required

    CS
     
    MEMum, daisybell, John Mac and 11 others like this.
  9. Tom Kindlon

    Tom Kindlon Senior Member

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    For what it is worth, I made my own image that can be shared on Twitter

    or Facebook:
    https://www.facebook.com/photo.php?....274636879297512.61710.100002536068526&type=3
     
    Last edited: Sep 21, 2016
    mango, Solstice, AndyPR and 5 others like this.

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