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Press Release from Rebecca Hansen

Discussion in 'General ME/CFS News' started by Ember, Mar 17, 2014.

  1. Ember

    Ember Senior Member

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    https://www.facebook.com/notes/just...s-release-from-rebecca-hansen/667282363333224

    March 16, 2014 at 11:17pm

    "We have been sent this Press Release from Rebecca Hansen - Chairman of the ME Association, Denmark."
     
    merylg, snowathlete, beaker and 14 others like this.
  2. adreno

    adreno 3% neanderthal

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    Tundras of Europa
    I can't believe this is going on in a civilized country. Hopefully something good will come out of the hearing, but I'm skeptical. I guess Per Fink is the danish equivalent of Simon Wessely.
     
    Last edited: Mar 17, 2014
  3. A.B.

    A.B. Senior Member

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    These psychiatrists are acting like inquisitors by imprisoning and torturing patients until they renounce their "false belief in organic illness". The supposed "true belief" is that in psychosomatic illness, which cannot be proven to be present or absent and is thus entirely a matter of faith. This should not be happening in a civilized society.

    Some might object to calling it torture, but imprisonment against one's will, isolation from family, being forced to take medication with unpleasant effects, as well being forced to do exercise while being severely fatigued do qualify as torture in my opinion.
     
    Last edited: Mar 17, 2014
  4. adreno

    adreno 3% neanderthal

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    This "treatment" is not only inhumane, it is also unscientific, as there is no evidence that psychosomatic illness exits.

    Their argument is a logical fallacy, as they conclude that since there is no objective signs of physical illness, it must be psychological (for which there is no objective evidence either). Their model doesn't explain anything, and it is dangerous since anyone can be accused of psychosomatics which cannot be disproven. It is no more scientifically valid than saying someone is possessed.

    For any model to be scientific, it must be falsifiable, and theirs isn't. It is in effect pseudoscience.
     
  5. A.B.

    A.B. Senior Member

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    Or a witch.
     
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Yes, these psychologist are nothing more than the modern version of witch doctors. :mad:
     
    PennyIA and ggingues like this.
  7. alex3619

    alex3619 Senior Member

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    Fallacy, pseudoscience, belief, nonscience, inquisition, I have blogged about these things before. Moreover the medical profession has been warned about this since about 1922 I think, which means 92 years now. The entire profession bears some responsibility, as a group, for much of this. Psychosomatic medicine, in any of its current incarnations (but not at about the 1860s) is unproven dogmatic hypothesis, and its unethical and immoral to practice it as though its about something real. Its all unsubstantiated opinion, and the time that doctors can speculate and incarcerate has to be brought to a close.

    PS I forgot the big glowing neon-pink elephant on my list: Zombie Science. Plus churnalism. Plus the decline of investigative journalism. Plus what I think should be called Zombie Economics. Its all connected.
     
    Last edited: Mar 20, 2014
    Ren, WillowJ, Antares in NYC and 3 others like this.
  8. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Consultation on functional disorders, 19 March 2014:

    The Parliamentary Health and Prevention Committee invites you to a consultation on functional disorders. The hearing will take place on Wednesday 19 March 2014 kl. 9:00 to 12:00 in the Parliament Hall at Christiansborg.

    The committee has invited a number of experts to debate the following two general themes:

    - Introduction to functional disorders and the key issues.
    - Functional disorders and diagnoses.

    There will be presentations from the following:

    - Professor Per Fink from Research Clinic for Functional Disorders
    - Practitioner Stig Gerdes
    - Lawyer Kjeld Parsberg
    - Chiropractor, lecturer and PhD Lars Uhrenholt
    - Specialist Dr. with. Henrik Isager
    - Professor and Consultant Peter Bytzer

    After the presentations of each topic there will be a possibility that MPs can ask questions. If time permits, will be opened up for questions from the audience.

    Source: https://www.facebook.com/meforeningen.dk

    Broadcast:

    Så er høringen om funktionelle lidelser den 19.3.2014 lagt ud på nettet!
    Consultation on functional disorders

    http://www.ft.dk/webtv/video/20131/suu/tv.2106.aspx
     
    snowathlete and Esther12 like this.
  9. Ember

    Ember Senior Member

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    Justice for Karina Hansen
     
    maryb, snowathlete, Valentijn and 4 others like this.
  10. A.B.

    A.B. Senior Member

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    That's good news. Most of them seem to realize that diagnosis of "functional disorder" is harmful rather than helpful.
     
    Last edited: Mar 21, 2014
    WillowJ, snowathlete and Valentijn like this.
  11. A.B.

    A.B. Senior Member

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    Does anyone know whether the English language statement has been made public yet?
     
  12. Cheshire

    Cheshire Senior Member

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    A letter written by her parents has been translated and can be found there: https://www.facebook.com/JusticeForKarinaHansen



    The whole thing is totaly insane. I don't understand why the psychiatrist are so opposed to physical tests. If their theory is right, there will be nothing wrong, the diagnosis of functional symptoms will be confirmed, and the patient won't be able to reinforce her wrong medical beliefs. Or are they afraid of finding something that would make their theory collapse like a house of cards...

    And I can't see how preventing someone from seeing her family could be constructive. Even with disfunctional families, the aim of psychotherapy is to make everybody able to live together.
     
  13. lnester7

    lnester7 Seven

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    I would be on the phone with every reporter over the whole world and every single human rights organization.
     
  14. snowathlete

    snowathlete

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    Harrowing. This poor girl. It's like something from a novel of some split reality where the nazis won the war. Except that this is real. Wow.
     
  15. Countrygirl

    Countrygirl Senior Member

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    https://www.facebook.com/changeformeaustralia/posts/757016160982937?fref=nf



    A letter from one of Australia's most pre-eminent ME specialists and passionate advocates.

    "Who will be held responsible if Karina Hansen dies?

    John Whiting via co-cure

    Mar 31 2014

    Dear readers,

    I have been personally involved in a case in Brisbane similar to that of Karina Hansen. At that time, I had no support from my local colleagues. The private hospital legally removed me from my patient's case and I have no knowledge as to whether my patient is alive or dead now.

    However, I have also witnessed several other unnecessary deaths here in Brisbane due to ME/CFS under circumstances of medical negligence relating to ignorance over the proper management of these disorders.

    In Karina Hansen's case, medical expertise assistance has been offered to her current treating doctors. Unfortunately, Karina's doctors have refused such assistance. I suggest that they fear criticism and accusations of negligence. Karina is literally becoming the sacrificial lamb in the name of psychosomatic illness. However, Karina should not become a martyr to our efforts, that is to ensure that ME/CFS becomes recognised as a legitimate medical illness with real organic underpinnings. Karina's life should be respected, regardless of other agendas.

    By now, Karina may well have developed secondary psychiatric phenomena whilst in hospital brought about by inappropriate care due to the ill informed efforts of those trying to help her. The fact that she is still in hospital and is no better and by the sound of things, is much worse than when she was admitted to hospital, in itself, is evidence that her care givers have no idea about the illness that they are trying to treat. How many illnesses do we know of, that require such lengthy in hospital care?

    I will assure you that the medical records of her hospitalisation will not reflect the true history of Karina's inpatient experiences. I kept my own personal medical records of the patient I looked after 15 or so years ago, as I could see how my observations differed so greatly from those of other staff (such as nurses) and that what was documented in the hospital records did not reflect the reality of the situation. Her records were clearly doctored in favour of the hospital's image and reputation.

    For an individual such as Karina to be denied the right to live or die because of political and so called 'medical controversy' is beyond the bounds of what modern medicine is intended to achieve.

    I personally accuse the doctors looking after Karina of medical negligence, on the ground of the information I have cited above. My goal is accountability now, as my prediction is that Karina is no better than she was before and is likely to be much worse and not better since she was admitted to hospital.

    Dr John L Whiting
    Brisbane, Australia
    ---------------------------------------------
    Send posts to CO-CURE@listserv.nodak.edu"

    Please like Justice for Karina Hansen to follow her story and so you know how to take action to support her.

    Hope for Change
    Amara
     
    Min, beaker, justy and 3 others like this.
  16. Desdinova

    Desdinova Senior Member

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    Shes the ultimate guinea pig. If they can break her and succeed with their treatment plan they will have disproved all the Medical Doctors around the world who support ME as a physical disorder of the body. In some wars armies fight over hills, valleys or plains. In this war they fight over, studies, definitions and patients. Unfortunately the other side is willing to employ scorched earth policy.
     
  17. Cheshire

    Cheshire Senior Member

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    On the facebook page Justice For Karina, there's the translation of a Per & Ketty's (Karina's parents) letter to the politicians published in the Danish newspaper Ekstrabladet.

    It goes on there: https://www.facebook.com/JusticeForKarinaHansen upload_2014-6-8_19-44-17.gif


    There are no words to describe the hell Karina and her family are living....
     
    zzz, Min, Iquitos and 4 others like this.
  18. Countrygirl

    Countrygirl Senior Member

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    I have just received this message in my news feed. Her poor family! I cannot bear to think how Karina is suffering.Horrid news!



     
  19. worldbackwards

    worldbackwards I talk because I can

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    The new inquisition.:grumpy:
     
  20. Min

    Min Senior Member

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    Appalling, she is being tortured.

    Prof Peter White is involved in this case, yet still the UK's ME Association, Action for ME and Action for Young ME charities choose to work with him in their Collaborative.
     
    Ren, Wildcat, zzz and 1 other person like this.

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