The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Pregame infusion drinking game

Discussion in 'Immunological' started by GONZ0hunter, Jun 27, 2015.

  1. GONZ0hunter

    GONZ0hunter

    Messages:
    118
    Likes:
    117
    Fragelle rock, USA
    Anyone get ivig infusions?

    I'm prehydrating right now and think if I approach this like a frat party I can make it easier.

    So I need some ideas...

    Drink every time some one gets tazed on cops
    Drink every time the dude cusses on lebowski

    Ummmm
     
    Valentijn and Kati like this.
  2. SOC

    SOC

    Messages:
    7,802
    Likes:
    16,459
    Prehydrating? I just started IVIG and no one mentioned prehydrating to me. But then, I'm always fighting to stay hydrated, so I can't imagine pushing even more fluids. Still, since I need to constantly be aware of hydration, I'm finding your suggestions quite useful in the general way. :p I have my own little tricks that will be completely useless to anyone who is not working as a tutor, so I'm no help.

    C'mon folks, how about some more suggestions? ;)
     
  3. GONZ0hunter

    GONZ0hunter

    Messages:
    118
    Likes:
    117
    Fragelle rock, USA
    Wait no one told you to prehydrating? Their are a bunch of reasons, easier vein access, keeps headaches away, etc

    You should find a new dr. Hahahah jk

    They said I should be drinking something with a bunch of electrolyte (Gatorade, power aide, with no sugar) then water.

    Until I pee clear every hour.

    I've done 4-5 infusions. I get them every 3 weeks for selective ige subclass 3 w no uptick to a vaccine challenge. You can read my story in a blog on here.

    Do you get a headache? It makes me really tired and migraines for 4-6 days. I use abortives to help.

    Do you have your own room or is it in a big room?
     

    Attached Files:

  4. SOC

    SOC

    Messages:
    7,802
    Likes:
    16,459
    Not a chance! My guy is amazing, especially for a doctor around here. I ain't letting go of him for nothin'. :p

    Ah, I do that routinely, so no need to tell me to do it, I suppose. :D

    I've only had one infusion at 40% dose (iirc) with only the very mildest headache so far -- hardly even worth mentioning. I'm not prone to headaches, much less migraines, so that may be helping me here.

    My next infusion, in 11 days, is supposed to be full dose. We'll see if I have more side effects from that.

    I had my own room, although most people getting infusions were in a big room. Maybe it was because it was my first infusion so they wanted me in a private room in case I had bad side effects...?
     
    Valentijn and Sushi like this.
  5. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    3,051
    Likes:
    6,037
    USA
    I was told to drink lots and lots of water and Gatorade. Even with that I got sick so they added saline before and after IVIG.

    With Privigen I had a wicked migraine and I sweat a lot.

    With Hizentra- couldn't get out of bed....heart flying, went to ER.

    With Gammaguard, had to have prednisone with infusions and liquids along with Benadryl. Many have to do this.

    Some take zofran.

    I was always wiped the next day after IVIG.
     
    Valentijn likes this.
  6. Valentijn

    Valentijn WE ARE KINA

    Messages:
    14,283
    Likes:
    45,804
    @Misfit Toy - Have you ever tried a proper electrolyte mix? Gatorade is mostly just over-hyped sugar water :p
     
    Misfit Toy and SOC like this.
  7. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    3,051
    Likes:
    6,037
    USA
    @Valentijn -I couldn't tolerate IGG. I had reactions every time that lasted for weeks. I hated the Gatorade and I agree with you. It's pure sugar.
     
    Valentijn likes this.
  8. GONZ0hunter

    GONZ0hunter

    Messages:
    118
    Likes:
    117
    Fragelle rock, USA
    Gatorade and power aide have 0 sugar options. I use that and then water.

    I was with a nutritionist who said tomato juice has 4 times the electrolyte Gatorade has. Too bad it taste like garbage.

    Zofran causes me to have massive migraines, haha.

    Sorry you had a hard time
     
  9. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    3,051
    Likes:
    6,037
    USA
    That's so funny that Zofran causes migraines...I know you are right. They gave it to me in the ER for a migraine and my migraine got worse and I was on the toilet the whole day...from Zofran! Yup. Effed up body chemistry I got going on.

    Thanks, Gonz,...it sucks because I really need IGG.
     
  10. SOC

    SOC

    Messages:
    7,802
    Likes:
    16,459
    Maybe, but Gatorade doesn't begin to contain a decent balance of electrolytes, nor does it have much of what it does have. It's more like drinking a Coke with some extra sodium (which one can easily get in the diet if one doesn't already get more than enough) and a touch of potassium, but nowhere near enough. Where's the calcium? Where's the magnesium?

    Gatorade was originally designed to counter sodium loss from vigorous exercise, not to provide balanced electrolytes for hydration. A great marketing plan has convinced many people that it's a valuable hydration aide, but it isn't. It's sugar and sodium, not balanced with other necessary electrolytes.

    A Coke and a bag of potato chips is about the electrolyte equivalent of Gatorade. And tastes a lot better, imo. ;)

    Check out Nuun tablets, Power Pak electrolyte powder, or ElectroMix. They're not just sodium and sweetener.
     
    Valentijn likes this.
  11. GONZ0hunter

    GONZ0hunter

    Messages:
    118
    Likes:
    117
    Fragelle rock, USA
    I am the 6 month before you see positive results, but it has already squashed my constant sinus infections.

    The really weird thing is I have complex apnea and haven't dreamt since I got sick. Since starting infusions I am dreaming major and my Apneas are spiking.

    Coincidence? Probably
     
    SOC likes this.
  12. GONZ0hunter

    GONZ0hunter

    Messages:
    118
    Likes:
    117
    Fragelle rock, USA

    You need to watch a Gatorade commercial. Athletes use it all the time while playing professional sports. They wouldn't lie.

    Thanks for the tip,
     
    SOC likes this.
  13. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    3,051
    Likes:
    6,037
    USA
    Well, the good news is...they are helping your infections. I have seen my other CVID friends become much better due to IVIG or IGG...I really hope it works for you and perhaps your apnea will let up. It takes time and for the body to adjust.
     

See more popular forum discussions.

Share This Page