When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
Discuss the article on the Forums.

Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood

Discussion in 'Latest ME/CFS Research' started by Kati, Jul 1, 2017.

  1. Sean

    Sean Senior Member

    Messages:
    3,260
    Likes:
    18,001
    You obviously need a clean sweep.
     
  2. Karen Kirke

    Karen Kirke

    Messages:
    48
    Likes:
    589
    For an alternative view, I hope that clinicians and parents of children and adolescents with ME/CFS (and indeed, the adolescents themselves) will come across this open access paediatric primer, which includes Peter Rowe, Rosamund Vallings and Nigel Speight as authors. It is is well-referenced, wide-ranging and very practical.

    http://journal.frontiersin.org/article/10.3389/fped.2017.00121/full

    (If someone has already linked to this primer in this thread and I haven't seen it, apologies!)
     
  3. TillyMoments

    TillyMoments

    Messages:
    18
    Likes:
    80
    The link is broken and just comes up with the pic below http://adc.bmj.com/content/early/2017/06/27/archdischild-2016-310622.full This link you have to ask permission

    Have NICE decided to have ME as Unexplained Medical Symptoms? Countess Mar asked about FII with regards to children and they put the question as this?
    https://hansard.parliament.uk/lords...74766C636C/HealthMedicallyUnexplainedSymptoms
     

    Attached Files:

    Luther Blissett likes this.
  4. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,850
    Luther Blissett and Snow Leopard like this.
  5. Dolphin

    Dolphin Senior Member

    Messages:
    10,708
    Likes:
    28,265
    Small correction:
    They actually have it correct in terms of what NICE says:
     
    Luther Blissett likes this.
  6. AndyH

    AndyH

    Messages:
    62
    Likes:
    431
    PEM with a delay in onset of at least 24 hours or more being the norm is a prerequisite symptom for a NICE diagnosis. Only at the three or four month period should they then look for whether all the symptoms have gone or not to confirm ME or otherwise.
     

    Attached Files:

    Luther Blissett likes this.
  7. RogerBlack

    RogerBlack Senior Member

    Messages:
    896
    Likes:
    2,896
    I strongly recommend archive.org - and have donated.
    Plugging in the above URL to archive.org gives
    https://web.archive.org/web/*/http:...Chronic-fatigue-syndrome/Pages/Diagnosis.aspx

    The Febuary version explicitly repeats the NICE list.
    This version is probably significantly better than what's there now.

    The change was between Feb and july this year.
     
    Luther Blissett and slysaint like this.
  8. Dolphin

    Dolphin Senior Member

    Messages:
    10,708
    Likes:
    28,265
    I thought this was interesting. I have rarely seen similar declarations in the ME/CFS literature.
     
  9. Dolphin

    Dolphin Senior Member

    Messages:
    10,708
    Likes:
    28,265
    I have read this paper and agree it is terrible.
     
  10. John Mac

    John Mac Senior Member

    Messages:
    318
    Likes:
    1,521
    Liverpool UK
  11. Dolphin

    Dolphin Senior Member

    Messages:
    10,708
    Likes:
    28,265
    http://opus.bath.ac.uk/55202/1/ADC_...ronic_Fatigue_in_Childhood_Revision_clean.pdf
     
    Hutan, Kati and Luther Blissett like this.

See more popular forum discussions.

Share This Page