Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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PR Firm Will Spread the Word About M.E. : CFS Central

Discussion in 'Action Alerts and Advocacy' started by Nielk, Jan 14, 2015.

  1. Nielk

    Nielk

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    http://www.cfscentral.com/2015/01/pr-agency-will-spread-word-about-me.html

    continue HERE
     
    beaker, taniaaust1, RustyJ and 11 others like this.
  2. catly

    catly Senior Member

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    outside of NYC
    just made my monthly donation
     
    RustyJ and Nielk like this.
  3. SOC

    SOC Senior Member

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    Hire protesters? Protesters are not sincere advocates? o_O How does one qualify for the "job" of protester? Does one have to know anything about the issue one is protesting about? That sounds so weird to me.

    This is why I am not a PR person... or a politician. :p

    Otherwise, this sounds like a great plan. I hope it's successful.
     
  4. Valentijn

    Valentijn Senior Member

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    I think the general idea (discussed on another thread) is that the hired protesters would be serving as obvious surrogates, rather than pretending to be patients. Which I'm totally fine with, especially with a disease which keeps us off the streets.
     
    beaker, catly, SOC and 1 other person like this.
  5. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Hiring protesters is a great idea seeing we cant do things like that ourselves. Even hired ones one can say are protesting about our situation.

    Getting ourselves heard and advocatng ME/CFS, is just as important as putting money into research.. as if we are silent.. we will never get governments to put in more research money etc into this illness and the public wont be donating to our research causes either.
     
    catly, SOC and Nielk like this.
  6. PNR2008

    PNR2008 Senior Member

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    OH USA
    If you can't clean house then you hire someone to do it. If you can't protest this disease and lack of funding then hire protestors. If lobbyists can't do a good job then you get rid of them.

    Donate so we can clean house.
     
    catly, SOC, Valentijn and 2 others like this.

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