Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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PR Firm Will Spread the Word About M.E. : CFS Central

Discussion in 'Action Alerts and Advocacy' started by Nielk, Jan 14, 2015.

  1. Nielk

    Nielk

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    http://www.cfscentral.com/2015/01/pr-agency-will-spread-word-about-me.html

    continue HERE
     
    beaker, taniaaust1, RustyJ and 11 others like this.
  2. catly

    catly Senior Member

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    outside of NYC
    just made my monthly donation
     
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  3. SOC

    SOC

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    Hire protesters? Protesters are not sincere advocates? o_O How does one qualify for the "job" of protester? Does one have to know anything about the issue one is protesting about? That sounds so weird to me.

    This is why I am not a PR person... or a politician. :p

    Otherwise, this sounds like a great plan. I hope it's successful.
     
  4. Valentijn

    Valentijn The Diabolic Logic

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    I think the general idea (discussed on another thread) is that the hired protesters would be serving as obvious surrogates, rather than pretending to be patients. Which I'm totally fine with, especially with a disease which keeps us off the streets.
     
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  5. taniaaust1

    taniaaust1

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    Sth Australia
    Hiring protesters is a great idea seeing we cant do things like that ourselves. Even hired ones one can say are protesting about our situation.

    Getting ourselves heard and advocatng ME/CFS, is just as important as putting money into research.. as if we are silent.. we will never get governments to put in more research money etc into this illness and the public wont be donating to our research causes either.
     
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  6. PNR2008

    PNR2008 Senior Member

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    OH USA
    If you can't clean house then you hire someone to do it. If you can't protest this disease and lack of funding then hire protestors. If lobbyists can't do a good job then you get rid of them.

    Donate so we can clean house.
     
    catly, SOC, Valentijn and 2 others like this.

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