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ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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Power to the patients! Vote Dec 3-12 for a new Biobank for the Vancouver Clinic

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Dec 1, 2012.

  1. maryb

    maryb iherb code TAK122

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    Last day get voting folks..........
  2. Nielk

    Nielk

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    Please continue voting throughout the last day.

    [​IMG]
    Little Bluestem likes this.
  3. Nielk

    Nielk

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    Only 4 hours left to vote!!!!
  4. Dreambirdie

    Dreambirdie work in progress

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    I voted every day on FaceBook. I hope everybody else did, and does today.
    Nielk and Kati like this.
  5. Tuha

    Tuha Senior Member

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    It was good work from everyone. there is still a small chance that we can do it to the finall if some organisations did a lot of illegal votes. remember that in the first round a lot of organisations lost hundreds of votes because of cheating
    Sasha likes this.
  6. Kati

    Kati Patient in training

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    The voting period has now ended, and as some may have mentioned it, we are not expected to make it to the finals.

    There maybe several reasons for this, however there is no blame to be put on anybody for everybody tried their best and gae their everything.

    A friend of mine told me a few days ago "you're not winning the popularity contest", and it's exactly what it is, a popularity contest.

    Lessons to be had,
    - our number of votes could have put us in finals with the smaller budgets categories. thoughthis may not be true for next year.
    - presenting a compelling story, putting faces to the stories. It was suggested to me just yesterday and by then I felt it was too late. Other projects had compelling stories. It's what wins people's hearts.

    I still feel we are winners after this contest for we have worked together and have spent the last 10 days on passing the word o these neglected illnesses and the newest clinic that is coming.

    thank you toeach and everyone of you.
  7. Sasha

    Sasha Fine, thank you

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    Those are all good thoughts, Kati, and things to think about for the future.

    Does anyone know when the next voting contest is?
    beaker likes this.
  8. Hope123

    Hope123 Senior Member

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    Here are my thoughts post-contest:

    1) The sharing of votes with other orgs. This could have been made clearer. Everyone was given 15 votes so that there were 5 leftover votes even after voting for the clinic once for the whole 10 days. In other contest, the trading of votes was more emphasized so probably more people voted for other charities and asked them to vote for us which might have helped put us over the top.

    2) Please share the results with any groups or e-mail lists you are on, even if we lose. This is not only to thank the people who did vote and supported the charity but to subtlely remind those who did not vote what happens when they don't participate. Specifically, list what position we ended up in and how many votes we lost by.

    3) By my calculations, with 4,000+ supporters and only 11,000 or so votes when I last voted, it averages out to 2.5 votes per person. That is, some people voted every day but others only voted once, with a great majority only voting once. If each supporter had voted even half the time (5 votes), we would have had 20,000+ votes finally and likely ended up in the top 10.

    4) The tagline needs to grab people's attention more. Saying that the money will buy equipment for a chronic disease clinic is accurate but may seem boring to others (esp. those not affected by CFS) and doesn't get at the heart of what getting the money means. People may also wonder why the clinic couldn't buy equipment itself and perhaps an explanation would have helped. Would the clinic have provided free or sliding scale care for low income patients? Mentioning this might influence voters as well.

    I'm no ad copywriter but something along the lines of "Help solve a medical mystery for 1 million Canadians!", "Help save a life!", etc. would not only be accurate but also perhaps more inspiring. The details of the program do mention this but some people won't be reading details. I noticed that some of the top 10 projects only benefitted one person; it might help to emphasize that this center helps many Canadians all over Canada and not just in one province.

    5) Alternatively, as mentioned above, a video of a single child with ME/CFS can have great impact. "One death is a tragedy; one million deaths is a statistic." But there's nothing against doing both -- have the tagline above and a video of a single child and his/her family.
  9. Kati

    Kati Patient in training

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    Hope, thank you for this very constructive input.

    #2 is a very important point,returning to our groups and voters. in fact I am continuing to post here and there on Twitter, and I keep on promoting Dr Bested's video, which speaks volumes.

    i would have loved to see a patient story on video. A friend would have been ready to do it, however the foundation said they would do one. It is certainly good to remember for the future. It can be really difficult to recruit patients for a video, and get a compelling story. i am not keen to be in front of a camera. Finding the right person is difficult, and on top of that we are dealing with sick organizers. I would love to see the Foundation finding a "poster child".

    As for the voting, retaining the voters can be easier to do if we send them to the facebook event page, sending them reminders. It's a bit tougher to do on Twitter where you need to send to large audiences to get a response. Then if you post a gazillion times like I did, people get really annoyed at the multiple posting. There is a fine line between compelling and annoying.

    I believe we can certainly build from here. It was my first time. It's been really exciting and a valuable experience for me, the foundation, and great exposure for the clinic, which has not even opened its doors yet!
    beaker likes this.
  10. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    I looked at the ranking by most votes on the Aviva site and all of the projects now show 0 votes. It says, “Grand Prize winners announced Jan 29th, 2013.” I looked at the Vancouver Chronic Diseases Clinic page and it also shows 0 votes. It says, “Finalists will be announced on December 17th.”
  11. Sasha

    Sasha Fine, thank you

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    Hi Hope - I think this is a really good point and I don't think the Aviva banner served us at all well, even on PR - it said something like 'Aviva community' which made it sound like a very local project, and 'medical equipment' for a 'clinic' which made it sound like only patients getting treated there would benefit, and the name of the clinic didn't mention ME, so it was sounding like a very local thing for treating patients with some vague collection of diseases. It wasn't - it was for a research biobank for ME/CFS/fibro patients to get at the very cause of our diseases and would benefit patients worldwide, not just in Canada. I hope we had enough coverage of the contest on PR to ram that home (that was why I wrote my article).

    It's a good question about what to write to get the support of people both within and outside our own forums. I think it's a really good idea that's being suggested here, to think about how we write taglines and thread titles for future contests.
    beaker likes this.
  12. Nielk

    Nielk

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    [​IMG]
    Hope123 and Kati like this.

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