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Power to the patients! Vote Dec 3-12 for a new Biobank for the Vancouver Clinic

View the Post on the Blog
by Kati and the Phoenix Rising Team



The Vancouver Chronic Diseases Clinic is set to open within the next few months. What better way to support this worthwhile project than to help it win some serious money from a charitable voting contest? With your help and support, we're getting organized to do just that! Although the Aviva Community Fund is a Canadian contest for Canadian projects, people from all over the world are eligible to vote. This is where your help is needed! Details on how you can help can be found further down the page, but first, some background information on the project...


A Patient Initiative

A few months ago someone pointed this voting contest out to me, but I had a hard time trying to find a project that would be both helpful for patients while also meeting the entry criteria. However, with Dr Alison Bested taking up the position of Medical Director at The Vancouver Chronic Diseases Clinic, the project to fund the clinic's most needed item came to mind and an idea was born. Since then, patient involvement has been amazing, including all of you who have spent many hours recruiting voters, voting and also creating videos (such as the ones created by "ME Awareness: Words and Pictures"). Thanks to each and every one of you! But, we're not done yet ;-), we need to bring it home!


BC Women's Foundation Steps in

While this project started as a patient initiative, the BC Women's Foundation have also stepped up to the plate by creating a video for our project. Along with Dr Bested, they provided help with the budget and input about where the funds are needed most. They will also recruit more voters from their own network. The video, presented by Dr Bested, is featured front and center on our Aviva page.


The Project

The idea is to fund freezers for patient samples, including everything needed to process them in the standard way (i.e labelling, spinning and tracking). This equipment will benefit ME, Fibromyalgia and Lyme disease patients admitted to the clinic. Our original idea was to fund the cost of exercise testing equipment (and it is still a very good idea), but when Dr Bested and the BC Women's Foundation started adding up the cost of both projects, the total had passed over $300,000. Each Aviva project in the “big budget” category cannot be more than $150 000, so we put together a bold project which asks for a total of $146,100 in funding.


The Time-line



Aviva held 3 qualifying rounds, each over the course of 2 weeks. The first 10 projects in each budget size category (small, medium and large) moved on to the semi-finals. By the seat of our pants we have successfully made it through the first round. The competition was intense, but the support we received from all around the world enabled us to place amongst the first round qualifiers.

The Semi-finals are the last chance for the community to help out. We need to qualify for the finals, where our project will be judged and ranked amongst the other projects that make it through. Out of 30 semi-finalists in each budget size category, only 10 will be moving to the finals.

The voting period is from December 3rd to December 12th 2012, beginning at 12/noon Eastern Standard Time (Toronto or New York time). By registering to vote in the Aviva contest, you will be given 15 votes in total. You can vote for our project once per day during the voting period. This will require 10 of your 15 votes.



How to Help?

The competition in this last round will be fierce and we will need, at a minimum, 1500 - 2000 votes per day to have a hope of winning. Beyond voting personally, you can help us achieve the votes we need by:-

- asking 5 people right now if they will vote daily starting on Monday

- asking these 5 people if they could get one more person each

- asking if they would like to be reminded daily (you can either connect them to the reminder here or alternatively, you could set your own reminder each day)

Historically, the voting in these contests has always decreased during the weekends, across all charities - these will be the days where we can gain ground, so please double your efforts on the weekends to ensure that our vote count stays up!


How To Vote?

Some of you may have had trouble voting in the last round. Patients with our diseases suffer from cognitive dysfunction and we are aware of this. To help you get voting, here are a few aids in the form of reminders and detailed instructions on how to vote in the contest.

Where to vote: Aviva site
Facebook page
You can join this event on Facebook to get daily reminders to vote.

Video explaining how to register and how to vote:


(With thanks to ME Awareness: Words and Pictures)

And finally, you can read written instructions from this flyer:



Why Should You Help Your Fellow Canadians?
  • Because a new clinic researching and treating ME, FM and Lyme disease will benefit patients worldwide. It means one more researching team. It sets a precedent for other physicians and for other provinces. Canada needs to step in when it comes to researching the Complex Chronic Diseases that have been neglected for far too long.
  • Voting is free and very safe - Aviva will not send you undesired emails.
  • Voting is also very quick and has the potential to do something very good.
  • By building a strong community, we can help each other by voting in funding contests as well as participating in other campaigns when the need arises.
View the Post on the Blog
 
The competition in this last round will be fierce and we will need, at a minimum, 1500 - 2000 votes per day to have a hope of winning. Beyond voting personally, you can help us achieve the votes we need by:-

- asking 5 people right now if they will vote daily starting on Monday

- asking these 5 people if they could get one more person each
We fell short on the first day. By asking others for help (and we need it), we encourage them to watch Dr. Bested's video. The consciousness-raising itself brings a benefit.
 
Everyone can vote from all around the world. i have personally asked.

please vote from all around the planet. We need everyone!

I will spend more time oer here becaue I have been kicked out from FB for "spamming". It's so unfair, I am promoting the contest!

Please share with your networks. ontinue to vote, do not give up until it's over. Last round some teams lost a lot of votes for illegal voting. We don't know when and if other teams will gove up. What I know is we have strength that other teams don't, the fact that we have international votes.

I have emailed all of the members of the legislature today. - I hope it helps.

image.jpg
 
We're currently in #15, but top 10 is within reach, and as Kati says, it ain't over 'til it's over (some projects can get disqualified for various reasons, so it may not be over even if we finish, say, 11th). But let's get friends and family going so that we move up into top 10!

Kati, so unfair with FB, how long will they keep you off? Can you create another account?

Posting my version of the voting instructions here, my friends seem to need detailed instructions, otherwise they get stuck and give up:

Here are instructions on how to vote. It's easy to do it via Facebook, but one can also vote via the Aviva website, so please spread the word to everyone you know - they don't need to have Facebook accounts!

1) Open this link (or google “ACF13624”):
http://www.avivacommunityfund.org/ideas/acf13624

On the first day: Register on the Aviva website (this step you only do once). You can register and vote via your Facebook account, OR via your e-mail this way: Click on “Register” at the top right of the screen. Fill in your e-mail address, choose a password, click “Register”. You will receive a confirmation e-mail with a link to complete your registration (if it doesn’t appear, check your Spam folder or wait a while, it may take some time).

3) Navigate to the Complex Chronic Diseases Clinic entry by opening this link:
http://www.avivacommunityfund.org/ideas/acf13624
(or google: ACF13624)

4) Click on “Sign in” at the top right of the screen. After signing in, you should be on the Complex Chronic Diseases Clinic page on the Aviva website (if not, use the link above). Find the blue “Vote now” button and click Vote. There will be a message confirming your vote and the button will turn grey.

5) Vote again tomorrow! Then go directly to
http://www.avivacommunityfund.org/ideas/acf13624

Sign in and click “Vote”. Please vote every day for 10 days. The last day is Dec 12th. If our project is in the top 10 at that point, it will receive at least $5,000 and could win $150,000 in the judged finals. That’s a lot of much needed money for biomedical ME/CFS research!

Last time only around 30 votes differed between #11 and #10, so every vote matters.
 
I have been sitting here reading other threads and waiting for my slow dial-up connection to load the Aviva contest page. It was ticking toward midnight so I was scrolling up and down looking for the sign-in button when I realized my 'dashboard' was showing. I looked at the very top and saw that I was signed-in. It must have signed me in automatically, unless I didn't sign out yesterday and they didn't automatically sign me out. I'll see what happens tomorrow.

ETA: 2101 votes, 2027 supporters. Why are there fewer votes than supporters? o_O We need to get a loyalty badge!
 
Day 3 voting just started, on about 2100 votes and with our project in the 14th place (where it has been for the last few hours). Please vote - it's just clicking the mouse!


I looked at the very top and saw that I was signed-in. It must have signed me in automatically, unless I didn't sign out yesterday and they didn't automatically sign me out. I'll see what happens tomorrow.

You stay signed in, unless you sign out. So you can stay signed in for the duration of the voting period, to save a little time each day.
 
We are still stuck around 15th position. We need to be in the top 10 to make the finals and are guaranteed at least $5,000 if we do.
People have been complaining bitterly about the lack of biomedical research, about all the psychobabble spread by certain parties and the harm that has and still is causing. Here is your chance to get some biomedical research off the ground in Canada - where there has been almost nothing!

An experienced ME/FM/MCS doctor is heading this. Dr. Bested is a hematologist (blood specialist) and very knowledgeable about natural therapies too - best of both worlds. She needs special equipment to properly process, track and store patient samples for research. Without this equipment, research cannot begin. We want it to start as soon as the clinic opens!

You can keep on complaining, which will accomplish nothing. Or, you can take 2 minutes of your time for the next 8 days and cast a vote. It costs you nothing but we will all reap rewards from research.

Anyone anywhere in the world can vote. If you don't vote, don't complain that there is no research!!
http://www.avivacommunityfund.org/ideas/acf13624

If you need detailed step-by-step voting instructions, see this post:
http://forums.phoenixrising.me/index.php?threads/aviva-contest-semi-finals-for-150-000.20742/page-2 (post #30)