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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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  1. Fuzzyhead

    Fuzzyhead Senior Member

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    I have had m.e for 12 years but my symptoms have changed since November. I was in the shower and I felt shaky and like I was going to faint, like when you feel like you need something sweet to eat. I had to sit down for a few minutes. 2 days later I went to get up in the morning and I had full on spinning vertigo and dizzy head 24/7 and a foggy head. I had pressure in the left side of my head and headaches. My dizziness was worse when I layed down or went to get up and certain positions I put my head. My gp thought it was bppv. The vertigo lasted a month and I haven't felt right every day since. I have night sweats, nausea,loose bowels, no appetite, depression, headaches, anxiety, extreme fatigue and my face seems to flush after I eat and somedays I feel like I can't breath properly and the back of my throat feels odd.
    Does any of this sound like pots?
  2. VeganMonkey

    VeganMonkey Senior Member

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    Australia
    Some of it sounds familiar. Get it tested to know for sure :)
  3. Valentijn

    Valentijn Activity Level: 3

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    Vertigo isn't a part of POTS.

    I've had bouts of vertigo too ... once during and after my pre-ME infection, and once about 6 months ago.
  4. VeganMonkey

    VeganMonkey Senior Member

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    You can get dizzy spells from POTS, due to the blood pooling in the legs and not having enough to go to the brain. Especially when getting up from lying down or sitting.
  5. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    It could be. Have you checked your heart rate sitting, then standing to see if it fits POTS?
  6. Fuzzyhead

    Fuzzyhead Senior Member

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    No I haven't checked my heart rate sitting then standing.

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