How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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POTS vs NMH in people with ME/CFS

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by ahimsa, Jul 11, 2011.

  1. Sea

    Sea Senior Member

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    NSW Australia
    I won't continue to go on any more about this but I find it very sad that you choose to see it in this way. "Does that make sense?" Is asking "Have I explained that properly?" It is NOT a reflection on you. Personally I appreciate when others are willing to take the time and effort required to help me learn something I did not know.
     
  2. ahimsa

    ahimsa Sick since 1990

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    Sharon, I am so sorry that my message came across the wrong way. I was not trying to insult you at all. I was trying to clear up some apparent confusion and also help with the quote tags. I feel sad that you felt insulted. Please believe me when I say that was the farthest thing from my mind.

    Lots of us have have cognitive problems. I also have some "brain fog" at times. And I know that I'm not very articulate at times.

    So can we just agree that I don't explain things very well and leave it at that?

    :angel: Truce? Peace? :angel:
     
  3. Sharon Lang

    Sharon Lang

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    I have no interest in fighting, and assume that we all have brain fog going on, as well as other issues. I did know this information, and the way it came across seemed patronizing. I was trying to get the information in quotations but had a difficult time with cutting and pasting on an ipad. This is why I specifically gave Dr. Rowe credit.

    Things can be misinterpreted when they are written as the emotional aspect left off. No hard feelings, I just wanted you to be aware that I was no oblivious to the information you were sharing.
     
  4. ahimsa

    ahimsa Sick since 1990

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    Oregon, USA
    Sushi

    Thanks for posting the information about the doctor who did your tilt table test. I have no idea whether I'll ever need/want more testing. But it's really nice to know where to find a compassionate doctor who is also an expert in this area -- not only testing but also for exploring new/different treatment options.
     

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