The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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POTS radical shift in symptoms

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by vortex, Dec 25, 2016.

  1. vortex

    vortex Senior Member

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    After a lifetime of blood pooling in my extremities I am now getting overconstriction and having very cold hands and feet after doing the methylation protocol.
    I am up to 5mg of methylfolate for the first time in my life and my POTS has taken a radical turn and went from blood pooling and tachyardia to blood over constriction while just sitting and relaxing. I have had POTS symptoms for 40 years, I remember as a child I couldnt stand at the bathroom sink too long brushing my teeth as my feet would get red puffy and itchy.

    I have been doing the methylation protocol and the thing I dont know yet is that I am not sure if I am healing and my system is coming back online and it is just oversensitive and overconstricting because it has never worked in my life and is just oversensitive right now and will eventually adjust or I am just getting wacky and chaotic dysautonomy and is not being healed, rather it has just grown more actively dysfunctional ?
     
    rosie26 likes this.
  2. rosie26

    rosie26 Senior Member

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    I have definitely experienced what feels like some big changes. I feel a lot more constriction and only in the last few years. Especially in my eyes, my vision feels strained, and I feel more tired and sore in the muscles behind the eyes. Some days are worse than others. I need to get my eyes checked. Sigh. Yet another thing I need to get seen to. Can't afford to do it at the moment.

    But I do feel more constricted in my chest as well. More pressure internally.

    Are you feeling the constriction in your eyes as well?
     
    Last edited: Dec 25, 2016
  3. vortex

    vortex Senior Member

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    POTS is lack of constricting of blood vessels in the extremeties that maintain blood pressure and keep it from pooling upon standing. so this wouldnt apply to you in your vision or eyes. POTS makes your heart race upon standing much like a propeller on a plane over revs on a steep dive, there is just no resistance.
     
    rosie26 likes this.
  4. sb4

    sb4 Senior Member

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    @vortex I don't think pots is exclusively a lack of constriction in the extremities, I don't have this problem however do have pots...
     
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  5. ryan31337

    ryan31337 Senior Member

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    Visual disturbances are really quite well accepted as being part of POTS symptoms. Commonly blurriness and sensitivity to glare.

    POTS is pretty complicated because its just the end result of dissimilar problems. There's enough research out there now to show its not just a result of inadequate peripheral vasoconstriction though. I found this review quite helpful in understanding the flow type sub-sets of POTS: http://www.sciencedirect.com/science/article/pii/S1880427611800311

    Perhaps you have shifted from one flow type to another.
     
  6. Snowdrop

    Snowdrop Rebel without a biscuit

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  7. rosie26

    rosie26 Senior Member

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    Yes, thanks. I know what POTS feels like. I have had it severe. I just have something else that feels like constriction added to all this existing mess of an illness. I wondered if you were experiencing anything with your eyes.
     
    Last edited: Dec 26, 2016
  8. sb4

    sb4 Senior Member

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    I had a massive permenant turn for the worse after high dose methylfolate. I suspect it just rappened my decline. My heart still pounded however weaker and I felt light headed, weaker and heart more rapid after.
     

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