Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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POTS people, any "full" feeling in knees"

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Sallysblooms, Apr 30, 2012.

  1. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    My knees have felt "full" hot since getting POTS. I guess it is the pooling? They turn red like my legs do, I know that the legs getting pooling. My knees feel hot sometimes, they do not hurt. I guess there is nothing to do but keep healing I guess.
     
  2. taniaaust1

    taniaaust1

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    Sth Australia
    No.. I dont get that feeling in knees.

    I dont thou get the red/purple POTsy legs either (only a few times when I was much ME worst) so I figure out I either dont have enough blood to go pooling anywhere, or its pooling elsewhere (abdomen).
     
  3. alice111

    alice111 Senior Member

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    i get the EXACT SAME THING! if i hold my hand above my knee i can literally feel the heat, and yeah they are red. I have seen in your other threads that you are improving has this gone as well?
     
  4. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    Jassy, yes, I have improved so much!
     
  5. charlie1

    charlie1 Senior Member

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    I just came across this thread. When I was walking a mile/day, before becoming ill, I would get very itchy legs just above the knees within 5-10 min of fast paced walking. Intense itch and when I scratched it, it would become bright red all over and extremely hot to touch but I wasn't having PEM or any other symptoms at that time. Do you think the red/itchiness in upper legs for you and myself were due to early symptoms of POTS?? I'm housebound now so don't know if that would still happen.
     

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