Here is a video on POTS that I am listening to at the moment which is nearly two hours long, so is quite comprehensive. For years, .....decades............ I had what I am sure was POTS. Sometimes my pulse pressure was so low at about 10 that I couldn't even raise my head without blacking out and, of course, couldn't function for more than a few minutes on my feet. However, starting about five years ago, all changed. Instead of my BP falling so low I couldn't function, it shoots up to dangerous levels and very rapidly and my brain doesn't seem to be able to adapt to the speed of change, giving me stroke like symptoms. Individual episodes have left me with permanent vestibular damage, persistent tinnitus etc. I believe this is still POTS, but my doctor said this doesn't happen in POTS, but from what I have read one can have very high BP too. The difference though is that the pulse pressure instead of falling to about ten is more like a hundred. If I am sitting or lying, my BP is acceptable, but when standing it can rise to about 220/126. Have any other long-term patients experienced this change, please? Didn't Dr Bell find that his long-term patients increased their functioning because their POTS symptoms changed and thus they could become more active? I am relying on memory here................which is very unreliable. C.G.