Postural orthostatic tachycardia is not a useful diagnostic marker for chronic fatigue syndrome.

[RogerBlack]

On an aspect that has not been mentioned.
http://oem.bmj.com/content/57/5/353.full - this discusses the CIS-F scale used.
I have not been able to dig up the details on the exact scoring, and am crashing for a bit.
The CBT results seem perhaps interesting to discuss also.

 

[RogerBlack]

It lists a study showing 170 cases of POTS per 100,000 people.

It does not seem quite ridiculous that the prevalance may differ significantly in people with fatigue.

 

[Michelle]

In addition to all of the problems mentioned in this thread about this study (a study which says more about the researchers & peer review for the journal than anything about POTS and ME/CFS or SEID), most OI & ME/CFS studies have a difficult time seeing a problem I've noticed in myself and seen others: PEM POTS. If I'm staying reasonably within my energy envelope (and if I'm keeping up with my 3+ liters of fluid intake), my heart rate will stay within normal (albeit high normal) range with standing. A day or two after I've been over-exerting, my heart rate will go from 75-80 supine to 110-120 standing. Which makes it damn tricky to catch for a clinician. Or helpfully tricky to catch for a quack who doesn't want to find it. Hence the reason Peter Rowe has been recommending clinicians focus on symptoms when standing rather than simply going off physiological measurements.

 

[TigerLilea]

Hi @TigerLilea personally I had to get out of country to get diagnosed with POTS. The local physicians do not do more than a reclining BP and HR and another set of vitals when standing. This is definitely not the standard to diagnose POTS.

I don't have any symptoms at all so I'm quite confident that I don't have it. But I understand what you mean about getting testing done in this country. I was in at my doctors last week and she couldn't order any of the testing I wanted done as it's not done here.

 

[alex3619]

PEM POTS.

I get PEM OI, as I don't have POTS. Instead of tachycardia I get bradycardia. I get hypotension that overwhelms my regular high blood pressure when I overdo things. That is when I am more likely to pass out. This study would have failed to detect my OI, completely, whereas a tilt table test caused enough bradycardia for my heart to stop.

 

[daisybell]

I get tachycardia occasionally when I've overdone things. I also get missed beats and the feeling of a pounding heartbeat that makes you catch your breath. These only seem to happen when I'm feeling worse than usual, either in a relapse or PEM. So I don't qualify for POTS but I'm not asymptomatic either.....