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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Post your submissions to APPG Inquiry into NHS Services for people with ME/CFS (UK)

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Dec 3, 2009.

  1. Dolphin

    Dolphin Senior Member

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    I thought I'd have a specific thread for people to post their submissions to APPG Inquiry into NHS Services for people with ME/CFS (UK), separate from the discussion on the report/Inquiry etc.

    They said they got 400 submissions but it's unclear how much information on these will ever be released.
  2. Dolphin

    Dolphin Senior Member

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    [A version is available in Word which would be easier to read. I also have
    a version in Word with line numbers.

    Disclaimer: This, like my submission on the CDC draft research strategy
    which had to be in on the same day, was written relatively quickly
    (mainly over a 24-hour period!) as I was concentrating on issues in Ireland.
    It is not meant to be a comprehensive submission on the issues
    - it just makes some points which I thought were important to make
    and which others might not concentrate on as there was a 3000 word
    count limit. Tom]




    ===============
  3. Mithriel

    Mithriel Senior Member

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    Scotland
    This is such very clear information, I hope they read it and do something.

    Mithriel
  4. Dolphin

    Dolphin Senior Member

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    Thanks Mithriel.
    I can't say I was that impressed with how they covered the issue of GET and CBT in the report:

    (I have the bit they had in blue in bold - the bits in blue in the report seemed to be the main point for each recommendation)

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