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Post your submissions to APPG Inquiry into NHS Services for people with ME/CFS (UK)

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Dec 3, 2009.

  1. Dolphin

    Dolphin Senior Member

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    I thought I'd have a specific thread for people to post their submissions to APPG Inquiry into NHS Services for people with ME/CFS (UK), separate from the discussion on the report/Inquiry etc.

    They said they got 400 submissions but it's unclear how much information on these will ever be released.
     
  2. Dolphin

    Dolphin Senior Member

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    [A version is available in Word which would be easier to read. I also have
    a version in Word with line numbers.

    Disclaimer: This, like my submission on the CDC draft research strategy
    which had to be in on the same day, was written relatively quickly
    (mainly over a 24-hour period!) as I was concentrating on issues in Ireland.
    It is not meant to be a comprehensive submission on the issues
    - it just makes some points which I thought were important to make
    and which others might not concentrate on as there was a 3000 word
    count limit. Tom]




    ===============
     
  3. Mithriel

    Mithriel Senior Member

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    Scotland
    This is such very clear information, I hope they read it and do something.

    Mithriel
     
  4. Dolphin

    Dolphin Senior Member

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    Thanks Mithriel.
    I can't say I was that impressed with how they covered the issue of GET and CBT in the report:

    (I have the bit they had in blue in bold - the bits in blue in the report seemed to be the main point for each recommendation)

     

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