Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Post exertional relapses

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Alesh, Apr 29, 2011.

  1. Alesh

    Alesh Senior Member

    Czech Republic, EU
    I am almost sure ME is some kind of chronic brain infection. If anyone has a flu or any other infectious disease and he is made to do some physical exercise his condition always deteriorates. Why is the same effect so "puzzling" for the "scientists" dealing with ME?
  2. heapsreal

    heapsreal iherb 10% discount code OPA989,

    australia (brisbane)
    i think it because there too much of a stigma to cfs, even for docs and scientists as those who look to entre this field are sometimes told that this is the end of their career, especially scientists as they are studying a make believe illness. We have to wait until they can nail down the exact cause like a retrovirus i guess. Admitting to PEM would be admitting cfs is real and not a psych condition.
  3. ixchelkali

    ixchelkali Senior Member

    Long Beach, CA
    I've thought the same thing. When someone has the flu, the doctors don't say "push on and ignore it," or "keep on working but pace yourself." They say "rest in bed, drink plenty of fluids, and take something for the pain."

    What's more, when you go to the doctor and say "Doc, I feel awful. I ache all over and I feel sick. I think I've got the flu," they don't say "Prove it." To me, this feels like a flu that never goes away. Why do I think there's probably a virus or other pathogen causing it? Because that's what it feels like. How do I feel? I feel SICK, just like other people who feel sick. Is that so hard to grasp?

    Well, whether the docs get it or not, this disease has taught me what it will and won't allow. When I try to push through it, it kicks me in the butt. The docs can call that "post exertional malaise"; I call it being sick.
  4. pamb

    pamb Senior Member

    Edmonton, AB, Canada
    very well put!

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