1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Post-Exertional Malaise: When The Other Shoe Drops

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 11, 2013.

  1. Chris

    Chris Senior Member

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    Victoria, BC
    Wayne likes this.
  2. Jody

    Jody Senior Member

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    Thanks Mera.

    I get unexplained swelling too, in my hands, arms, feet and legs. Interestingly, chiropractic tends to clear it up pretty quickly these days.
  3. anniekim

    anniekim Senior Member

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    Thanks. Too ill to write more
  4. Jody

    Jody Senior Member

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    Sorry to hear that, Anniekim.

    I am dealing with some brain fog this week myself. So give me a bit of time on this. I won't forget.
  5. anniekim

    anniekim Senior Member

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    Absolutely no rush. Sorry u bad too
  6. Jody

    Jody Senior Member

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    Here are a few article links that may help.

    abnormalities that are cellular, genetic and systemic -- information on mitochondria abnormalities in ME/CFS. mitochondria are the power suppliers in each cell --
    http://www.davidsbell.com/LynNewsV5N2.htm

    systemic abnormalities --
    http://www.name-us.org/MECFSExplainPages/TestAbnormalities.htm

    cellular and genetic and systemic abnormalities --
    http://www.supportme.co.uk/causes.htm

    abnormailities that are systemic, cellular --
    http://www.cfs-ireland.com
  7. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I think for me inflammation plays a part. I am experimenting with anti-inflammatories.

    Sushi
    Jody likes this.
  8. anniekim

    anniekim Senior Member

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    Hi Jody, very kind of you to remember and reply to my question. I hope you are a bit better at the mo.

    Sorry for being slow on the uptake but I am still a bit ignorant. Would muscle problems be an example of cellular problems, would mito say be systemic (as would pem)? Genetic I understand more.
  9. Jody

    Jody Senior Member

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    I'm no expert on this stuff either. :) Here's what a google search found --
    Cellular dysfunction would affect the cell's ability to take in nutrients, moisture and oxygen and its waste removal. Cell reproduction might be abnormal. I think it would include mitochondria dysfunction, and any problems involving DNA. So in general it would mean anything happening within the cells.
    Systemic dysfunction affects organs and tissues, or affects the body as a whole. I think muscles would fall into this category.

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