Dysautonomia specialist Dr. Emilia Arden is attempting to open a dysautonomia clinic in Portland, Oregon. While not in California, this would be the only such clinic on the West Coast, which would be a major milestone. Thus far the clinic would include diagnosis through cardiologist, nurse practitioner to help assist, cardiac rehab, hematology, GI and nutritional consults and hopefully evolve to include genetics and pediatrics. MCAD testing and biofeedback would also be part of this.
One of her patients is requesting our help: "On March 4th I will accompany her (Dr. Arden) to make a business model presentation to St. Vincent's Hospital to request consideration for a Dysautonomia Clinic...Anyone who would support this clinic should let me know so I can bring in some actual numbers for the presentation....I will be given time to share stories and statistics about our need for this center."
Please send Anita an email if interested, and include information about your need, such as if you are looking for a POTS/dysautonomia diagnosis and management team, if you already have one on the East Coast and have to travel for care (Portland is much closer), if you want the clinic to include pediatrics etc. How many in your family are affected? Male/female, diagnosed/undiagnosed, degree to which it is disabling etc.
Please send your responses specifying the need for this clinic to
Anitaallen@live.com and she will share your responses during the presentation on March 4th.
Just breaking this up.
GG