Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Possible Dysautonomia Clinic in Portland, Oregon--action needed

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Sushi, Mar 2, 2015.

  1. Sushi

    Sushi Senior Member Albuquerque

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    Valentijn, Sing, leela and 1 other person like this.
  2. leela

    leela Slow But Hopeful

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    Couchland, USA
    Thanks for posting, @Sushi. Letter sent.
     
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  3. Gingergrrl

    Gingergrrl Senior Member

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    @Sushi This sounds like a great clinic but I am not well enough to fly at this point. I wish she was opening it here in L.A. (but that is just being selfish on my part!). Best wishes to anyone who goes and to the doctor for taking on this much needed issue.
     
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  4. leela

    leela Slow But Hopeful

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    I can't travel either, but didn't include that detail in my letter :rolleyes:
     
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  5. *GG*

    *GG* Senior Member

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    Dysautonomia specialist Dr. Emilia Arden is attempting to open a dysautonomia clinic in Portland, Oregon. While not in California, this would be the only such clinic on the West Coast, which would be a major milestone. Thus far the clinic would include diagnosis through cardiologist, nurse practitioner to help assist, cardiac rehab, hematology, GI and nutritional consults and hopefully evolve to include genetics and pediatrics. MCAD testing and biofeedback would also be part of this.

    One of her patients is requesting our help: "On March 4th I will accompany her (Dr. Arden) to make a business model presentation to St. Vincent's Hospital to request consideration for a Dysautonomia Clinic...Anyone who would support this clinic should let me know so I can bring in some actual numbers for the presentation....I will be given time to share stories and statistics about our need for this center."

    Please send Anita an email if interested, and include information about your need, such as if you are looking for a POTS/dysautonomia diagnosis and management team, if you already have one on the East Coast and have to travel for care (Portland is much closer), if you want the clinic to include pediatrics etc. How many in your family are affected? Male/female, diagnosed/undiagnosed, degree to which it is disabling etc.

    Please send your responses specifying the need for this clinic to Anitaallen@live.com and she will share your responses during the presentation on March 4th.

    Just breaking this up.

    GG
     
  6. xks201

    xks201 Senior Member

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    Fly me in....math major about to be in med schooL :)
     
  7. ahimsa

    ahimsa Sick since 1990

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    @Sushi, I just saw this message today. Sorry I did not see it yesterday or I would have been happy to send information.

    Edit: I decided to send Anita a quick message just in case.
     
    Last edited: Mar 4, 2015
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