Action for ME has put out an appeal for participants in an online questionnaire. The "study" is being done by a psychology undergraduate who, as far as we can tell, knows nothing about ME, and it's absolutely terrible. There is a strong assumption throughout that ME is a psychological illness and that anyone filling in the questionnaire is in excellent physical health, able to work, ideally eating a standard recommended diet and participating in strenuous physical exercise several times a week. The standard psychiatric questions will be skewed by physical illness but give no room to explain that, e.g. if you no longer enjoy hobbies as you once did - due to being physically unable to continue them - then they will conclude that you are depressed. It also asks what you believe to be the three main causes of your illness, which is bizarrely inappropriate for this sort of physical condition but would fit perfectly with a psychological approach (e.g. "I feel my illness was caused by childhood trauma and my inability to cope with adult life"). The questionnaire was poorly designed and will doubtless be poorly interpreted in such a way as to conclude that ME sufferers are making themselves ill through poor lifestyle choices and poor mental health. Personally I feel that we are better off not filling in this questionnaire, and emailing both the student and her supervisor to explain what is wrong with it. As I have already filled it in, I intend to email them both to request that they withdraw my responses, once I have the energy to put together an email explaining exactly what is wrong with the questionnaire. If anyone else wants to do a proper analysis of the thing, please do share!