Discussion in 'Gastrointestinal and Urinary' started by Allyson, Jan 13, 2014.
cynacobalamin iall have treid so far X
great idea Leopard - that will also let you know if you go over a litre or two in a certain time - if your hands get wet y have polyuria! lol
SO sorry I never saw these til now Me sci - thank you so much!
are you able to say quicklywhat they re about or is that pushing envelope?
CHeers! much appciated
thanks Nila - what is the best kind of topical to get plz? - time I started It
Sorry - haven't read it lately so can't remember details, but it states how to differentiate different types of polyuria, e.g. by what is dissolved in the urine, which may be glucose, minerals or other things. I'm not sure how good it is. I noticed that it does advise cutting down on salt in one section, which is unwise for some people and may have no basis at all.
There has also long been a tendency in the health services and in some papers to assume that people are drinking too much fluid (even when they say they are not and have kept fluid charts to prove it!).
Yet another problem is that there are different views on what constitutes polyuria, with docs in the UK having very simplistic definitions which don't take account of people's weight, which is idiotic.
But the paper is interesting nonetheless and I think it does have some useful info in it.
I managed to do it by putting plastic milk container next to the toilet, peeing into it, and putting a line on each time I urinated. I was shocked just how much was passing through me. I you are weeing more than hourly, your doctor should be making a proper assessment for what's causing your urination. He/she should be ruling out both of Addison's and Diabetes insipidus. Doing it that way allowed me to get both numbers of times and amount of urine. Have those bits of information is what caused my GP to try a bit harder.
I fully sympathise though, I found it bloody hard work too.
Funnily enough it turned out to be Citalopram that made me much worse (for me most anti-depressants have nasty side effects).
First rule of Medicine MeSci.. if the doctor can't understand it, it must be the patients fault...
That sounds very interesting I will read - it is one symptom my doc as never asked about
And when i mentioned I he said it was not part of POTS
but when I asked on fb lots of POTsies said they did have it...so maybe it is now....
Polyuria can cause POTS and meds to stop it are used to treat it (see Julia Newtons study) but some doctors are adamant it's caused only by the nervous system.
Maybe your doctor is better than the ones I have had. I provided detailed fluid charts (intake and output), and underwent the standard fluid deprivation test, and had a Synacthen test, but these will not pick up idiosyncratic ME-type/partial/mixed-type diuresis/polyuria or ME-type endrocrine abnormalities. They therefore concluded that I was drinking too much water, ignoring my denials and expert info supplied.
At one point a GP stopped my desmopressin prescription without warning, discussion or explanation. I just turned up at the pharmacy to collect it and it wasn't there. When I phoned the doctor to ask why, I was treated with aggression and incorrect claims about what was and wasn't in my medical records (which I discovered later after finally getting a copy of them, which was like trying to get blood out of a stone).
I have ended up having to buy some of my desmopressin online or return to the nightmare from which it had released me. I would never have considered buying drugs online before that, partly due to all the horror stories in the media and partly due to already living in poverty due to ME.
Even the endocrinologist insisted that one had to be born with DI (!), it could not be partial or intermittent, and that normal urine output was unrelated to body mass.
And he is regarded as one of the UK's top endos. Heaven help us.
So good luck, anyone in the UK wanting a correct diagnosis and prescription...you may need all you can get.
There is a fairly recent article on Julia newton here on Phoenix.
When I first got action was passing 14 litres / day and had to virtually write a Masters paper and get four referrals before tests were done. It was more harassing him into submission.
Most British endos are diabetic specialists doing very small amounts of endocrinology.
As yet unpublished the Phoenix thread has a link to a presentation. When I last emailed her, she was dealing with Peer review.
A link would be nice.
thought you had been active in the thread, but will post link when I find it
Maybe I was, but I have that ME (lack of) memory!
The first diseases that come to mind for polyuria, nocturia and polydipsia are kidney disease, diabetes and adrenal insufficiency. Your doctor can order blood tests to check for kidney disease and diabetes. Most doctors are kind of ho-hum about adrenal insufficiency, but a good lecture about adrenal gland health is here:
As of today, the lecture that is loaded is about the adrenal glands. I don't know how long it will be posted. I watched it last night and was thoroughly impressed.
I'm a retired medical technologist with a B.S. in Medical Technology, former medical laboratory manager, if that gives you any confidence in the opinions I've expressed.
discussed in the video presentation here
Ta. Not time to watch video but have read and contributed to the thread.
You can also try a Google Site Search
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