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Polyuria, Nocturia and Polydipsia--ME symptoms?

Discussion in 'Gastrointestinal and Urinary' started by Allyson, Jan 13, 2014.

  1. Allyson

    Allyson *****

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    Are polyuria, nocturia and polydipsia acknowledged symptoms of ME please?

    Many PWME whom I ask have them. How about an easy online research project where PWME are asked to keep accurate fluid balance charts for 2 weeks or more? Thismay throw some light on it - it may be a cause of or result of POTS - we do not know. FOr me IM B 12 injections improve for a week or 2 - ie the polyuria stops - then returns after the injection wears off...or so it has seemed tme foe quite some time. IM B 12 is something that helps a lot of people with ME - maybe this is why..aparantly it is used to build connective tissue and also boosts blood volume.

    THanks
  2. NilaJones

    NilaJones Senior Member

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    Magnesium helped me a lot with nocturia.
    Allyson likes this.
  3. Allyson

    Allyson *****

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    Intereting thanks - I take that but noticed no effect there

    A
  4. ukxmrv

    ukxmrv Senior Member

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  5. NilaJones

    NilaJones Senior Member

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    It didn't have any effect for me until I worked my way up to 600mg oral + about 600 topical. But maybe I just got lucky!
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  6. tyson oberle

    tyson oberle

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    I seem to urinate far too much in the winter even though I usually don't drink any water or anything other liguid. Sometimes I feel dehydrated in the winter and I try to drink some water, but it seems as though it doesn't help any and that I just urinate it away. I don't know if I urinate too much in the summer because I do believe I drink lots of water during that time period and maybe it is proportional to what I urinate. I have also noticed that when I feel dehydrated in the summer it also often seems as though it doesn't help me either. When I feel dehydrated I really don't feel that I am thirsty. I wonder why I often times don't feel thirsty when I feel dehydrated? Do you think B12 injections might help? Does it have to be injections? I have taken B12 injections in the past, but I never noticed any improvements in symptoms. But I don't know if it helped with excessive urination or if I even had excessive urination back then when I was on the B12 injections. I wonder if vasopressin would help me? Do you think I should try it?
    Allyson likes this.
  7. Allyson

    Allyson *****

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    it has to be B 12 injectios for me and they definitely help me Tyson - maybe keep a fluid balance chart before and after to see how much and how often you are pee....good luck

    Ally
  8. Allyson

    Allyson *****

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    i take neo B12
  9. Allyson

    Allyson *****

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    have bever tried topical but too much oral gives me the runs alas so I have to limit it

    A
  10. NilaJones

    NilaJones Senior Member

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    Yeah, I think that's the reason people use the topical stuff.
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  11. Allyson

    Allyson *****

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    thanks - wll look into that then - never realised the link @NilaJones
  12. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I have two types of polyuria - dilute and concentrated. I've discussed it on other threads and in my blog. The dilute type responds to desmopressin, the other type doesn't and can have a wide range of causes.

    I have a file on polyuria but can't upload the pdf so will try to post 3 pages at a time.

    Attached Files:

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  13. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Whoops - must have pressed 'post reply' too soon!

    Next pages.

    Attached Files:

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  14. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Last pages.

    Attached Files:

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  15. stridor

    stridor Senior Member

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    By July 2012, I was urinating over 20 times a day - with 4 and sometimes 5 times a night. I never did get an accurate count as I was too apathetic and fogged. After supper was the worst - I'd go 6+ times during a movie.
    There was an immediate marked improvement with mB12 and the symptom was completely resolved within a week. I am up 0-1 a night now which is OK for a guy my age.
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  16. taniaaust1

    taniaaust1 Senior Member

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    B12 injections did not help this in me, obviously it just couldnt boost my blood volume enough (my POTS symptoms are very severe). Magnesium doesnt help me either with this.

    Florinef has made a difference and I pee far less with it (about once a night, occassionally twice on the 2.5 pill dose Im on currently).

    Another thing which helped me was homeopathy, I had a great homeopath who people used to fly in from overseas to see him, I never knew what was in the homoeopathic med he gave me but I went from needing to pee 6-7 times a night .. to peeing not even once a night after only ONE DOSE of it and that effect lasted years.

    I personally think that I'd say these symptoms are part of ME as so many of us have coexisting POTS with it and the POTS of cause has been caused by the ME.

    At one point I was having to drink so much that I was peeing twice an hour sometimes (my electrolites thou start to screw up at that point).

    I collapsed with dehydration last summer after drinking over 4L of fluid that day and the other day when I ended up collapsed and having to be ambulanced to hospital, I noticed after a couple of hours there, my lips were cracking due to dryness (the nurse also noticed and noted it in their report). My body just really struggles to hold onto its fluids.
  17. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I've just done a couple of blogposts on polyuria, specifically the osmotic/solute type that does not respond to desmopressin/DDAVP but includes mineral loss in urine. The second post cites evidence for how resveratrol and curcumin could help to prevent it.

    They are here and here.
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  18. Leopardtail

    Leopardtail Senior Member

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    Easiest way is to collect some empty milk cartons (for a man), wee into them, and if you need a times urinated count, put a line on with a marker.
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  19. stridor

    stridor Senior Member

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    Jeepers @Leopardtail, all I was trying to do was to keep count on a piece of paper beside the sink in the bathroom and couldn't even get that sorted out! :) I was peeing every 12 minutes in the evenings and I have my wife to thank for that measurement.
  20. Allyson

    Allyson *****

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    cynacobalamin is all have tried so far X - have you tried any other kinds?

    Cheers
    Ally

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