Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Poll: Which Type of Treatment Has Not Worked For You At All?

Discussion in 'General Treatment' started by Jesse2233, Feb 9, 2017.

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Poll: Which Type of Treatment That You Have Tried Has Not Worked For You At All?

  1. Prescription anti-virals (i.e. Valcyte, Ribivarin, Famvir)

    6 vote(s)
    11.3%
  2. Supplemental anti-virals (i.e. OLE, DHQ, Neem)

    3 vote(s)
    5.7%
  3. Immunomodulators (i.e. LDN, Equilibriant, Nexavir, Interferon)

    8 vote(s)
    15.1%
  4. Metabolic Supplements (i.e. D-Ribose, CoQ10, Glutathione)

    15 vote(s)
    28.3%
  5. Methylization Support

    8 vote(s)
    15.1%
  6. Stimulants (i.e. Ritalin, Provigil, Caffeine)

    18 vote(s)
    34.0%
  7. Prescription Anti-anxiety (i.e. Xanxan, Klonapin)

    4 vote(s)
    7.5%
  8. Prescription Anti-depressants (i.e. Prozac, Zoloft)

    26 vote(s)
    49.1%
  9. B-Cell Depletion (i.e. Rituximab)

    1 vote(s)
    1.9%
  10. Gut support (probiotics, prebiotics)

    11 vote(s)
    20.8%
  11. Atypical Treatments (Naphazoline, Nitroglycerin, Ketamine)

    0 vote(s)
    0.0%
  12. IVIG

    0 vote(s)
    0.0%
  13. Plasmapheresis

    0 vote(s)
    0.0%
  14. Relaxation techniques / meditation

    19 vote(s)
    35.8%
  15. Psychotherapy / CBT

    29 vote(s)
    54.7%
  16. Acupuncture

    13 vote(s)
    24.5%
  17. Graded exercise

    28 vote(s)
    52.8%
  18. Have not been able to get treatment

    6 vote(s)
    11.3%
  19. Pacing

    5 vote(s)
    9.4%
  20. Anti-microbial / anti-biotic

    8 vote(s)
    15.1%
Multiple votes are allowed.
  1. Jesse2233

    Jesse2233 Senior Member

    Messages:
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    Southern California
    Poll: Which Type of Treatment Has Not Worked For You At All?

    Hi everyone,

    This is a sequel to the previous poll about Most Effective Treatments. Thanks to @alex3619 and @Neunistiva for the suggestion.

    Please respond if your diagnosis corresponds with the Canadian Consensus Criteria for CFS/ME

    Thanks!

    Edit: it won't let me add anything new. If you have anything else to add (such as mold remediation or metal detox) feel free to post a reply
     
    Last edited: Feb 9, 2017
  2. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    10,197
    Likes:
    29,103
    USA
    Two things that did not work for me were anti-virals (Famvir and Valcyte) and methylation but I have had many treatment disasters along the way... too many to even remember them all right now!

    ETA: Sorry I just saw the part to only respond if you match the CCC definition of ME/CFS and I am no longer sure if I do. So please disregard my answer and let me know if I should delete this.
     
    Jesse2233 likes this.
  3. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,862
    Likes:
    4,833
    Southern California
    It's ok Ginger, always good to hear your experience
     
    Gingergrrl likes this.
  4. cb2

    cb2 Senior Member

    Messages:
    321
    Likes:
    125
    HI @Jesse2233 that is a great list..and I love this poll idea, i was wondering about mold, or moving out of "mold" or would that fall under environmental ? also food plans? I am looking forward to seeing what replies you get on this.
     
    Gingergrrl likes this.
  5. TigerLilea

    TigerLilea Senior Member

    Messages:
    1,136
    Likes:
    3,411
    Vancouver, British Columbia
    I ticked "gut support", however, to be fair, there are many different families and strains of probiotics, and I have only tried a few so far. This is a work in progress.
     
    PatJ likes this.
  6. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,862
    Likes:
    4,833
    Southern California
    Thanks! I missed that one and it's not letting me add any new ones. I'll edit the text of the post to include mold remediation.
     
  7. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    10,197
    Likes:
    29,103
    USA
    Agree moving away from mold and also food issues (for people with MCAS/allergies) is a huge one although it will not apply to everyone. Both were lifesaving for me and allowed me to tolerate treatments I could not have otherwise.
     
  8. dancer

    dancer Senior Member

    Messages:
    297
    Likes:
    938
    Midwest, USA
    Yes, I fit the Canadian Consensus Criteria.
     
  9. Oberon

    Oberon Senior Member

    Messages:
    189
    Likes:
    307
    Woolie and rosie26 like this.
  10. rosie26

    rosie26 Senior Member

    Messages:
    2,419
    Likes:
    5,164
    I found d ribose helped reduce pain in my hands within a hour of taking and gave me a few more hours of energy which I could use without serious payback (it seemed).

    But... I became very sick at the end of 2014, two years after I began taking ribose. Major problems with my lungs and burning symptoms with profuse sweating increased severely making me seriously ill in all of 2015. I feel that the ribose contributed and sped up another process or pathway in my ME for the worse. I will not take ribose again.
     
    Woolie and MeSci like this.
  11. MeSci

    MeSci ME/CFS since 1995; activity level 6?

    Messages:
    7,985
    Likes:
    12,847
    Cornwall, UK
    I think that this happens with a lot of treatments. They work well - even brilliantly - maybe for a couple of years, then our condition plummets and there seems to be no way back. It's so cruel.
     
    rosie26 likes this.

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