Discussion in 'General ME/CFS Discussion' started by lnester7, Oct 3, 2016.
Do you have a family member with any type of lymphoma history?
Yes, three months ago my father was diagnosed with mantle cell lymphoma.
There are some reports this is very common in ME patients.
Sister died of T-cell lymphoma (non-Hodgkin).
Edit: At age 26.
Is all Lymphoma malignant?
'.cos I've got lumps of benign lymphomas all over, a big one on my side and one on my head lol (never gonna shave my head, I'd be lumpy).
Does the kind of lymphoma you refer to mean bad, cancer spreading lymphomas?
My father got them too, which is interesting 'cos it's my mother who imo has CFS.
Maybe you are thinking of lipomas, the fatty tumors?
That is why I made this poll to have an idea how prevalent the issue is so we bring it up to researcher's attention.
Maybe you could do a parallel study asking about EBV.
Epstein-barr virus-associated non-Hodgkin's lymphoma of B-cell origin, Hodgkin's disease, acute leukemia, and systemic lupus erythematosus: a serologic and molecular analysis
My mother and her brother got ME-like symptoms when they were in their 40s. My uncle got a disability pension at age 50, although without any specific diagnosis.
My mother could work, she was self employed, and had a room with a bed in her office. At 75 she was diagnosed with Mantle cell lymphoma, and given Rituximab. It seems to have extended her life with a couple of years, but three years later the Rituximab effect is waining.
There are currently no signs of the lymphoma, but her health status reminds very much of my own.
I got my symptoms earlier than they did, and my health in my 50s is worse than their in their 70s. But there are many similarities. (...and some differences, maybe explained by the sex difference.)
My grandmother died from stomach non-Hodgkin´s Lymphoma. One of my main symptoms is stomach nausea/pain but I try not to think much about that...
I have something that looks like small bowel lymphoma (in the terminal ileum), i had lots of testing done but doctors have not been able to conclude if it's malignant or not and kinda dropped me. 4 years later i try not to stress about it, i'm going to see a top notch specialist in 3 months for reevaluation.
You can also try a Google Site Search
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