The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Poll - There is Lymphoma in my family

Discussion in 'General ME/CFS Discussion' started by lnester7, Oct 3, 2016.

?

Do you have a family member with any type of lymphoma?

  1. Yes

    30.6%
  2. No

    69.4%
  1. lnester7

    lnester7 Seven

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    Do you have a family member with any type of lymphoma history?
     
  2. Dan_USAAZ

    Dan_USAAZ

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    Phoenix, AZ
    Yes, three months ago my father was diagnosed with mantle cell lymphoma.
     
  3. alex3619

    alex3619 Senior Member

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    There are some reports this is very common in ME patients.
     
    Dan_USAAZ likes this.
  4. Webdog

    Webdog Up to 91% remain undiagnosed

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    Sister died of T-cell lymphoma (non-Hodgkin).

    Edit: At age 26.
     
    Last edited: Oct 4, 2016
  5. Skippa

    Skippa Senior Member

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    Is all Lymphoma malignant?

    '.cos I've got lumps of benign lymphomas all over, a big one on my side and one on my head lol (never gonna shave my head, I'd be lumpy).

    Does the kind of lymphoma you refer to mean bad, cancer spreading lymphomas?

    My father got them too, which is interesting 'cos it's my mother who imo has CFS.
     
  6. Violeta

    Violeta Senior Member

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    Maybe you are thinking of lipomas, the fatty tumors?
     
    Skippa likes this.
  7. Skippa

    Skippa Senior Member

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    Oh, oops :oops:
     
    Violeta likes this.
  8. lnester7

    lnester7 Seven

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    That is why I made this poll to have an idea how prevalent the issue is so we bring it up to researcher's attention.
     
    Manganus likes this.
  9. Violeta

    Violeta Senior Member

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    Maybe you could do a parallel study asking about EBV.

    https://www.ncbi.nlm.nih.gov/pubmed/12188384

    Epstein-barr virus-associated non-Hodgkin's lymphoma of B-cell origin, Hodgkin's disease, acute leukemia, and systemic lupus erythematosus: a serologic and molecular analysis
     
    merylg likes this.
  10. Manganus

    Manganus Senior Member

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    Canary islands
    My mother and her brother got ME-like symptoms when they were in their 40s. My uncle got a disability pension at age 50, although without any specific diagnosis.

    My mother could work, she was self employed, and had a room with a bed in her office. At 75 she was diagnosed with Mantle cell lymphoma, and given Rituximab. It seems to have extended her life with a couple of years, but three years later the Rituximab effect is waining.

    There are currently no signs of the lymphoma, but her health status reminds very much of my own.

    I got my symptoms earlier than they did, and my health in my 50s is worse than their in their 70s. But there are many similarities. (...and some differences, maybe explained by the sex difference.)
     
    Last edited: Apr 7, 2017
    merylg likes this.
  11. Pendergast

    Pendergast Spain

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    My grandmother died from stomach non-Hodgkin´s Lymphoma. One of my main symptoms is stomach nausea/pain but I try not to think much about that...
     
    Last edited: Apr 7, 2017
  12. Thinktank

    Thinktank Senior Member

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    I have something that looks like small bowel lymphoma (in the terminal ileum), i had lots of testing done but doctors have not been able to conclude if it's malignant or not and kinda dropped me. 4 years later i try not to stress about it, i'm going to see a top notch specialist in 3 months for reevaluation.
     
    merylg, Webdog and lnester7 like this.

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