Discussion in 'General ME/CFS Discussion' started by wastwater, Jul 23, 2016.
Do you have:
C both POTS and hypothyroidism
I select B,I would like to see if there is a divide and if anyone has both,and what symptom pattern it correlates with
I wonder if POTS people are more muscular symptoms and Hypothyroidism folk are more brain problems based.
3.brain and muscle
I would be a B2
You can turn this into an actual poll. Below the box for posting a new thread, you can set up a poll.
I have hypothyroidism, treated by T3. And POTS-lite. Which I've gotten on top of by resuming mast cell stabilizers. I learned in the linked article that POTS has correlations w/ both autoimmune and mast cell conditions.
I have both POTS and hypothyroidism (Hashimoto's disease) and my #1 symptom is shortness of breath combined with lung/diaphragm weakness and overall muscle weakness. I also have MCAS/mast cell disease. I do not have a lot of brain/cognitive symptoms. No idea if my answer is helpful or not!
ETA: I guess I would be a C1 and missed that part of the question yesterday!
D - neither
Borderline C. 3
About 2 years ago T4 was towards low end of normal. TSH just below normal range. Treatment with levothyroxine brought TSH towards middle of normal range but worsened symptoms to a scary extent.
Clear orthostatic hypertension. Some readings suggested marginal POTS. My GP suggested I acquire the machine to monitor BP but then seemed to regard me as a hypochondriac for using it to obtain results which did not accord with requirements.
I have been reflecting on at what stage my PVFS started to acquire the thyroid symptoms. I suspect it was at 12 to 15 years.
In the first 11 years when I still got to see a consultant endocrinologist he often commented that my BP was a bit high but he dismissed it as "white coat syndrome". I now wonder whether it was the early stages of orthostatic hypertension and if it was dismissed because he had results of 24 hour monitoring in hospital, which were normal.
Diagnosed many years before developing ME with Hashimoto's. POTS is undiagnosed but I have many of the POTs symptoms.
D - neither - as far as I know.
Hashimotos but not POTS.
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