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Poll:POTS/hypothyroidism

Discussion in 'General ME/CFS Discussion' started by wastwater, Jul 23, 2016.

  1. wastwater

    wastwater Senior Member

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    Do you have:
    A POTS
    B Hypothyroidism
    C both POTS and hypothyroidism
    D neither
     
  2. wastwater

    wastwater Senior Member

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    I select B,I would like to see if there is a divide and if anyone has both,and what symptom pattern it correlates with
    I wonder if POTS people are more muscular symptoms and Hypothyroidism folk are more brain problems based.
     
  3. wastwater

    wastwater Senior Member

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    Then select:
    1.muscle based
    2.brain based
    3.brain and muscle
    4.neither
     
  4. wastwater

    wastwater Senior Member

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    I would be a B2
     
  5. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
  6. ukxmrv

    ukxmrv Senior Member

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    A3
     
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  7. Gingergrrl

    Gingergrrl Senior Member

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    I have both POTS and hypothyroidism (Hashimoto's disease) and my #1 symptom is shortness of breath combined with lung/diaphragm weakness and overall muscle weakness. I also have MCAS/mast cell disease. I do not have a lot of brain/cognitive symptoms. No idea if my answer is helpful or not!

    ETA: I guess I would be a C1 and missed that part of the question yesterday!
     
    Last edited: Jul 24, 2016
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  8. TigerLilea

    TigerLilea Senior Member

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    D - neither
     
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  9. lnester7

    lnester7 Seven

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    C
     
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  10. Chrisb

    Chrisb Senior Member

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    Borderline C. 3

    About 2 years ago T4 was towards low end of normal. TSH just below normal range. Treatment with levothyroxine brought TSH towards middle of normal range but worsened symptoms to a scary extent.

    Clear orthostatic hypertension. Some readings suggested marginal POTS. My GP suggested I acquire the machine to monitor BP but then seemed to regard me as a hypochondriac for using it to obtain results which did not accord with requirements.

    I have been reflecting on at what stage my PVFS started to acquire the thyroid symptoms. I suspect it was at 12 to 15 years.

    In the first 11 years when I still got to see a consultant endocrinologist he often commented that my BP was a bit high but he dismissed it as "white coat syndrome". I now wonder whether it was the early stages of orthostatic hypertension and if it was dismissed because he had results of 24 hour monitoring in hospital, which were normal.
     
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  11. Invisible Woman

    Invisible Woman Senior Member

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    Probably C3

    Diagnosed many years before developing ME with Hashimoto's. POTS is undiagnosed but I have many of the POTs symptoms.
     
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  12. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    D - neither - as far as I know.
     
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  13. digital dog

    digital dog Senior Member

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    Hashimotos but not POTS.
     
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  14. Misfit Toy

    Misfit Toy Senior Member

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    I have both hypo (no thyroid) and pots. happened after I became hypo.
     
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  15. Kati

    Kati Patient in training

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    What do you mean, muscle or brain based?

    And agreed, you should use the forum poll tool
     
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  16. Invisible Woman

    Invisible Woman Senior Member

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    I took it to mean whether your symptoms are predominantly muscle pain/weakness or cognitive issues.
     
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  17. TiredBill

    TiredBill Senior Member

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    B2.

    A little over a year and a half ago my fatigue worsened (it's been 33 years dealing with CFS). So with the benefit of more user-friendly insurance, I started pressing to see if there were any co-factors that could be contributing to my fatigue.

    Among the things that were sub-optimal were my thyroid levels. FT4 was in the "normal" rage, but at the bottom of "normal." TSH was also "normal" but in the top of the range (depending on what accepts as a "normal" range).

    If I wasn't feeling knackered I'm not sure the very conservative Endocrinologist I saw would have treated me. But I "self-advocated." It has been almost a year of slowly raising the dose of levothyroxine. I think I may have finally hit the "optimal" dose of 137 mcgs in the past weeks.

    Optimizing thyroid levels has been helpful to me (but it has not solved CFS).

    My symptoms have been mostly fatigue, brain fog, unrefreshing sleep, PEM, and in the earlier "viral-like" early phase symptoms included night sweats, swollen glands, photophobia, and crash-inducing chemical sensitivities (tobacco smoke and acetone being especially bad culprits). I've never had unexplainable muscle or joint pain, GI issues, or POTS.

    Bill
     
    Last edited: Sep 24, 2017
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