The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
Discuss the article on the Forums.

Poll: How Long Did it Take You to Begin Treatment?

Discussion in 'General Treatment' started by Jesse2233, Mar 24, 2017.

?

How long did it take you to begin treatment for your condition?

  1. 1-3 Months

    4 vote(s)
    10.8%
  2. 4-6 Months

    0 vote(s)
    0.0%
  3. 6-8 Months

    0 vote(s)
    0.0%
  4. 8-12 Months

    1 vote(s)
    2.7%
  5. 2 years

    3 vote(s)
    8.1%
  6. 3 years

    0 vote(s)
    0.0%
  7. 4 years

    1 vote(s)
    2.7%
  8. 5 years

    1 vote(s)
    2.7%
  9. 10 years

    3 vote(s)
    8.1%
  10. 15 years

    0 vote(s)
    0.0%
  11. 20 years

    1 vote(s)
    2.7%
  12. 25 years

    1 vote(s)
    2.7%
  13. 30 years

    1 vote(s)
    2.7%
  14. Never been treated

    21 vote(s)
    56.8%
  1. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,875
    Likes:
    4,863
    Southern California
    How long did it take you to begin treatment for your condition?

    I'm not referring to diagnosis, supplements, or palliative treatments but specifically referring to medical intervention targeted at a core, albeit theoretical, pathology.

    PS - also not CBT/GET

    Thanks!
     
    Last edited: Mar 24, 2017
  2. deleder2k

    deleder2k Senior Member

    Messages:
    1,122
    Likes:
    4,847
    Perhaps add an option that is "no treatment offered"?
     
  3. halcyon

    halcyon Senior Member

    Messages:
    2,330
    Likes:
    5,457
    Diagnosed and started treatment within the first year. I thought I'd be one of the lucky ones. Three years later I'm not sure how lucky I am now.
     
  4. NelliePledge

    NelliePledge plodder

    Messages:
    775
    Likes:
    3,527
    Are you including medication to reduce symptoms like sleep/pain amitryptiline, pregabalin? if not you'd need to add not getting medical intervention
     
    Cinders66 and Jesse2233 like this.
  5. Sushi

    Sushi Moderation Resource Albuquerque

    Messages:
    14,809
    Likes:
    22,509
    Albuquerque
    You might want to extend the 10 years + to be a little more explicit--could be interesting as for many of us it was about 30 years.
     
    Jesse2233 likes this.
  6. Murph

    Murph :)

    Messages:
    635
    Likes:
    3,124
    Minor thing but the spacing on the first four options is wacky. should be 1-3 months; 4-6; 7-9; 10-12.
     
  7. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,875
    Likes:
    4,863
    Southern California
    Argh you're right, @Sushi?
     
  8. Neunistiva

    Neunistiva Senior Member

    Messages:
    260
    Likes:
    1,424
    Which treatment would that be? I was not aware anyone was offering ME/CFS treatments (just symptom management) outside of scientific studies
     
  9. Webdog

    Webdog Senior Member

    37 years here. No option for that, so I'll check 30 years.
     
    Joh, Jesse2233 and Sushi like this.
  10. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,875
    Likes:
    4,863
    Southern California
    Well I suppose that depends on a wider philosophical question of what you believe the underlying etiology to be (for at least a subset) and whether or not you think a current treatment addresses it (even sporadically).

    For example:

    Dr Chia believes it's enterorviruses and he prescribes Equilibrant to suppress them

    Dr Shoemaker believes it's mold, and he uses CSM to unbind toxins

    Fluge and Mella posit that it's autoimmune (for a subset) so they use RTX and Cyclophosphamide for immunosuppression
     
  11. Molly98

    Molly98 Senior Member

    Messages:
    550
    Likes:
    4,447
    Perhaps you need to add the option- UK resident so No treatment options available;)
     
    Jan, Lissyleigh, NelliePledge and 3 others like this.
  12. Lissyleigh

    Lissyleigh

    Messages:
    86
    Likes:
    172
    I was never offered any treatment.
     
  13. Alvin2

    Alvin2 If humans were rational...

    Messages:
    1,327
    Likes:
    3,691
    I've known something is wrong for close to 30 years and have tried dozens if not hundreds of treatments, but i was not nearly this bad until the last 5 years.
    So i'm not sure how to answer
     
  14. edawg81

    edawg81 Senior Member

    Messages:
    109
    Likes:
    281
    Upstate, NY
    Although my health continues to deteriorate i got in to see a good specialist 8 weeks into my signifcant illness onset (although i was sick and high fuctioning for the last 10 years). A practioner who has experience with me cfs and got me on an antivrial protocol right away.

    I owe it all to the trolls in the cebv forum on facebook. If it wasn't for them bugging me to see a REAL doctor I would still be left untreated by local doctors.

    Oh can I thank the forum too? You guys are the best, I learn more everyday.
     

See more popular forum discussions.

Share This Page