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Poll: Has raising the head of your bed helped your OI/POTS/NHM?

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Sasha, Mar 15, 2010.

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How has raising your bed head affected your orthostatic intolerance?

  1. <8": felt better

    26.1%
  2. <8": no difference after a week

    26.1%
  3. <8": felt worse

    13.0%
  4. 8" to 12": felt better

    4.3%
  5. 8" to 12": no difference after a week

    13.0%
  6. 8" to 12": felt worse

    4.3%
  7. >12": felt better

    4.3%
  8. >12": no difference after a week

    4.3%
  9. >12": felt worse

    4.3%
  1. dmbaken

    dmbaken

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    So how does raising the head work with two people in the bed- one with POTS and one not (and the one without sleeps on their stomach).
     
    merylg likes this.
  2. Sasha

    Sasha Fine, thank you

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    Unless you've got a gigantic bed and one of you can have a big, bed-length foam wedge, I guess it can't, unless your non-POTS partner is willing to sleep on a slope.
     
  3. perchance dreamer

    perchance dreamer Senior Member

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  4. Sasha

    Sasha Fine, thank you

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    Incidentally, I've found myself able to sit, or sit with my feet up, for longer without needing a rest although, weirdly, my total time spent resting hasn't changed (which I think must mean I'm sleeping longer, or at least staying in bed longer).

    Not a major change, though I've only had the bed tilted for about a month.
     
  5. DeGenesis

    DeGenesis Senior Member

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    I've been taking Bystolic 5 mg for POTS for at least 6 months (and as low as 1.25 mg when I first started it. That was more than 6 months ago I think). For the past month my bed has been raised (I need to go measure how much). I raised it to combat GERD. POTS was an afterthought. (It was worked well for GERD though).

    The past week I noticed that my heart rate was too low, and I had to lower my Bystolic dose to 2.5 mg. Keep in mind that dose had been stable for half a year, and I didn't add any other drugs or supplements. I credit elevating the head of the bed for improving my POTS, therefore forcing me to lower my Bystolic dose.

    This is a great thing because I think Bystolic (a beta-blocker) was a negative thing overall for my OI. While it improved my vitals on paper and made my GP happy, it made me fatigued. The screwed vitals were a compensatory mechanism I suppose. Of course the beta-blocker would also lower blood volume over time as well.

    Interestingly, I feel best with a low HR of 60-80 (not surprising) a moderate diastolic BP (also not surprising), but a HIGH systolic BP of 130-150 (surprising I think, but probably not to many of you).

    Unfortunately doctor's can't understand that some people might require different BP's to function optimally.


    Two side effects from raising the bed. I have to pee more frequently in the night and when I'm resting in bed, and I dream more vividly.

    Just measured and it is elevated 8".
     
    Last edited: Aug 17, 2015
    Sushi likes this.
  6. DeGenesis

    DeGenesis Senior Member

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    I'm increasing to 12". I'll post how it goes. It's usually pretty rough the first few nights of an increase, and benefit isn't seen for a couple of weeks. I need to be careful not to take anything that lowers blood pressure or else I'll have to move to the couch for a night or two.

    I have been at 12" before, and unlike 8", I never totally got used to it. It always felt odd. But since I have the privilege of being healthy enough to stand that level of elevation, I'm going to give it another go. More is not always better, but I am almost ALWAYS guilty of breaking this rule.
     
    Last edited: Aug 18, 2015
  7. shannah

    shannah Senior Member

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    When my bed was raised, I had difficulty staying in it. Kept sliding down.

    I'm curious. Doesn't this happen to anyone else?
     

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