New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Poll: Freddd's B-12 Treatment Plan

Discussion in 'Detox: Methylation; B12; Glutathione; Chelation' started by caledonia, Apr 21, 2010.

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I have tried Freddds B12 Treatment Plan with the following results:

  1. I am in effective remission (80%+)

    7 vote(s)
    8.0%
  2. Major Improvement

    23 vote(s)
    26.1%
  3. Moderate improvement

    16 vote(s)
    18.2%
  4. Minor improvement

    11 vote(s)
    12.5%
  5. No change

    12 vote(s)
    13.6%
  6. Minor crash

    3 vote(s)
    3.4%
  7. Moderate crash

    3 vote(s)
    3.4%
  8. Major crash

    4 vote(s)
    4.5%
  9. Unable to continue protocol

    9 vote(s)
    10.2%
  1. bootsydan

    bootsydan

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    @Freddd

    Thanks so much for your detailed information!

    I am a newbie looking to embark on methylation unblocking. Just to clarify: what are the core "deadlock quartet" supplements?


    My current understanding of what's initially required (in simplified terms, I've noted brands/amounts above) is this:

    1) Remove folate/glutathione from diet. Add back in when comfortable with the progress of the protocol.
    2) Low dose B-Complex (1, 2 &3) without folic, folinic acid and CyCbl.
    3) Sufficient diet/supplementation of: Vit A, C, D, E, magnesium, zinc, calcium, selenium, chromium, trace minerals, lecithin, and Omega 3.
    4) MeCbl
    5) AdoCbl
    6) L-methylfolate
    7) Potassium
    8) L-Carnitine Fumarate


    A few questions:
    a) is this correct?
    b) is there anything necessary/advisable to take after 8?
    c) are Bananas a sufficient source of potassium, as opposed to supplementation?
    d) any particular brands in 2 & 3 that are advisable? any that should be avoided?
    e) i plan to start on small doses of 4, 5, 6, and 8. But what are the maximum amounts I should be working up to?
    f) if I notice an increase in symptoms during the early stages of the protocol, this is to be expected and I should continue taking the supplements?
    g) if there is no increase in symptoms during the early stages than I can increase the dosages?
    h) if after increasing the dosages to the maximum there is still no increase in symptoms, nor any noticeable improvement, then I probably do not need to continue the protocol?



    I really appreciate your work. Thanks so much!
     
    Last edited: Mar 27, 2014
  2. knackers323

    knackers323 Senior Member

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    There was recently a new thread made that has all the current recommended brands of each supp in freddd s treatment plan.

    Anyone know what it is called?

    Thanks
     
  3. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
  4. knackers323

    knackers323 Senior Member

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    Thanks ahmo but that wasn't the one I am thinking of if anyone else can remember it
     
  5. picante

    picante Senior Member

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    Helena, MT USA
    I've been on Freddd's B-12 protocol since October, and I wouldn't persist with it if I didn't think it was starting to address the root causes of my 22-year illness.

    However, I haven't voted in this poll. I'm still discovering basic cofactors that I've missed and still learning which symptoms are indicative of which deficiencies.

    Many people have commented on the difficulty of actually finding out what the full protocol is. For myself, I did an entire month of reading on the forum before starting the DQ, and at that point I thought I had the essentials in place, but didn't.

    @sheclimber's recent PDF file is the closest thing to a reference document for the full protocol, and it is very recent:
    http://www.phoenixrising.me/forums/index.php?entries/my-understanding-of-freddds-protocol.1697/

    I understand the need to keep updating a reference document like this one. However, such a tool has been sorely needed on this site.

    I would love to see this poll redone at some point, once there is a way to know whether we newbies are really following the protocol or just pieces of it.

    I would love to see a crowd-sourced effort to either improve & revise sheclimber's document as needed, or to develop a flow chart that people can follow, complete with links to explanations of these concepts. For me, understanding them is as vital as having a short chart I can refer to. The map is not the territory, but I still need the map.

    I would be willing to contribute English editing skills to that sort of effort.
     
  6. sheclimber

    sheclimber

    Messages:
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    Likes:
    18
    Chicago, IL
    It would also be great if we could somehow factor time into the poll, might have to use an outside service like survey monkey. I haven't voted in the poll because I've only been on the protocol for 2 months, and I'm still adding things in. That said, I'm already solidly at Moderate Improvement.

    I also love the idea @picante presented about crowd-sourcing a guide.
     
  7. Leopardtail

    Leopardtail Senior Member

    Messages:
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    Likes:
    655
    England
    Don't get too disparaged Tara. ME is an umbrella for a mish-mash of different problem. The B12 protocol did not work for me (I had high B12 and healthy methylation before it). B2, vitamin C and ribose did though.
     
  8. Gondwanaland

    Gondwanaland Senior Member

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    1,686
    Is that good or bad?
     
  9. Freddd

    Freddd Senior Member

    Messages:
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    1,106
    Salt Lake City
    That is the smell of methyl arsenate coming out of a persons lungs. It is very poisonous and needs outside venting. It's good that the arsenic is coming out. Others can breath it in.
     
  10. Gondwanaland

    Gondwanaland Senior Member

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    I usually get a garlicky funny breath from selenium. I know that selenium has its own garlicky touch, but was wondering if it is possible to tell them apart.
     
  11. Freddd

    Freddd Senior Member

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    1,106
    Salt Lake City
    I doubt that selenium creates methyl arsenates. Also, consider that arsenic has a short serum halflife and normally a person has to have a regular source of input to have chronic arsenic poisoning, such as water, food or something added to food or drink. Arsenic grabs methyl groups very aggressively. I don't know why selenium would. Curious.
     
  12. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    2,802
    Likes:
    1,686
  13. Farhan Muzzumil

    Farhan Muzzumil

    Messages:
    9
    Likes:
    1
    Allahabad, India
    Hello there,
    I am cfs patients from age of 18, and I am here from India. I had not done anything in treating my illness except pacing and now I am 24, it is some 5 years have been passed and now I am trying to start the methylation treatment, and I am very concerned with the treatment, I am working full time in a Job as Medical Representative and I have to ride my motorbike in the most unsafest road of the world and very concerned to start with it. And I maybe at my 70 percent of my pre illness level with pre emptive rest and pacing.
    And I want to know that where to get all the supplement If i want to start with it. Please help me in the pro and con of it. and I can not afford costly supplement because I belong to low income group. Please help me.
     
  14. Farhan Muzzumil

    Farhan Muzzumil

    Messages:
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    Likes:
    1
    Allahabad, India
    Hello there,
    I am cfs patients from age of 18, and I am here from India. I had not done anything in treating my illness except pacing and now I am 24, it is some 5 years have been passed and now I am trying to start the methylation treatment, and I am very concerned with the treatment, I am working full time in a Job as Medical Representative and I have to ride my motorbike in the most unsafest road of the world and very concerned to start with it. And I maybe at my 70 percent of my pre illness level with pre emptive rest and pacing.
    And I want to know that where to get all the supplement If i want to start with it. Please help me in the pro and con of it. and I can not afford costly supplement because I belong to low income group. Please help me.
     
  15. helen1

    helen1 Senior Member

    Messages:
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    516
    Vancouver, Canada
    @Farhan Muzzumil

    Welcome to the forums Farhan! :):balloons:

    You should probably start a new thread rather than post in this thread as you will get more responses that way.;)
     
    Farhan Muzzumil and picante like this.
  16. caledonia

    caledonia

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    2,117
    Cincinnati, OH, USA
    Hi @Farhan Muzzumil,
    Congratulations on getting to 70% of normal! I agree with your concern. It's easy to make yourself worse with this disease. The best thing would be to study and research everything before diving in.

    Check out my links on methylation (in my signature below). That should explain a lot and help you decide what to do.
     
    Farhan Muzzumil and AnnaDove like this.
  17. Critterina

    Critterina Senior Member

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    Arizona, USA
    Hi @Farhan Muzzumil ,
    I buy mostly from Piping Rock and Swanson websites for good quality and good prices. I may also use Vitacost and iherb from time to time. I also check the sale shelf wherever I go.
    Good luck to you!
     
  18. Farhan Muzzumil

    Farhan Muzzumil

    Messages:
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    Allahabad, India
    Okay I will do that next time. Thanks you for your response I really appreciate that.
     
  19. Farhan Muzzumil

    Farhan Muzzumil

    Messages:
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    1
    Allahabad, India
    Okay thank you for your response @celedonia I will throughly read it with my fullest attention whatever I will have at the time.
     
  20. Farhan Muzzumil

    Farhan Muzzumil

    Messages:
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    Allahabad, India
    dear @crittenia there are problems of availability in India well I had seen them on amazon brand name is Jarrow and this is the only brand available there, my problem is that I dont know if buying the right thing or not.
    I am giving you the link If you can tell me it is right or not.
    http://www.amazon.in/Jarrow-Formula...9187&sr=1-1&keywords=5-methyltetrahydrofolate
     

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