Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Plymouth CFS talk on : The development of ‘body reprogramming’:

Discussion in 'Upcoming ME/CFS Events' started by cornwall13, Mar 5, 2015.

  1. cornwall13

    cornwall13

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    Found this on the British Physchological society website, theres a talk in Plymouth and its free on
    19/03/2015 - 17:30 - 20:00

    Plymouth Hub: The development of ‘body reprogramming’: a theory-based, multi-component educational package for patients with fibromyalgia and ME/CFS - Professor Michael Hyland

    http://www.bps.org.uk/events/develo...ponent-educational-package-patients-fibromyal

    Michael E. Hyland is a fellow of the British Psychological Society, a Distinguished International Affiliate of Division 38 of the American Psychological Association, is a chartered health psychologist and is Professor of Health Psychology at Plymouth University. He obtained a BSc at Bristol University in 1971 and a PhD at the University of Wales in 1977.

    His early career was as a theoretical psychologist, working on the nature of theoretical entities particularly in relation to mind-body problems.
    From the late 1980s he worked as a health psychologist focusing on respiratory disease (asthma and chronic obstructive pulmonary disease). He has constructed several scales for use in respiratory disease, some for outcome assessment and some for disease management, the latter including the asthma bother profile, the lung information needs questionnaire (LINQ) and the DOSE index. His research in respiratory medicine includes studies on adherence to medication and its relation to outcome.
He has contributed to theoretical development in health psychology, using network theory to explain medically unexplained symptoms and functional disorders such as chronic fatigue syndrome and fibromyalgia, a summary of which was published in a book “The origins of health and disease”. This theoretical work has been combined with empirical studies on non-specific aspects of therapy (e.g., placebo effects) and on the effect of dysregulation on asthma exacerbations and with colleagues in the NHS, is being used as the basis for Body reprogramming, a novel treatment programme for people with fibromyalgia.

    Fees
    This is a free event and open to everyone including BPS members, students and the General Public, but you must register to attend.

    This event is being financially supported by the Society’s South West of England Branch, who has invested in the event.

    How to book
    To register your place, please book online via the link below

    https://response.questback.com/britishpsychologicalsociety/bodyreprogramming/

    Further information
    Talk will be 6.15pm - 7.15pm



    Location:
    The Treasury, Catherine Street, Royal Parade, Plymouth, Devon, PL1 2AD
    http://www.thetreasurybar.co.uk

    Please note a change of location

    Dates:
    19/03/2015 - 17:30 - 20:00
    Contact Information:
    If you have any queries, please email MemberNetworkServices@bps.org.uk . Please start the email subject line with the phrase ‘South West body reprogramming March 2015’.

    Organiser:
    BPS South West of England Branch
    • End



    Professor Hyland made a comment on the bps website back in 2012

    http://www.bps.org.uk/news/behavioural-therapies-can-help-me

    Professor Michael Hyland, a Fellow of the British Psychological Society, comments:

    "The PACE trial is a well-conducted study which has provided evidence, contrary to the assertion of patient groups, that adaptive pacing does not lead to benefit whereas cognitive behaviour therapy (CBT) and graded exercise therapy do.

    "Nevertheless, even with the best designed studies there are several possible interpretations of the data. Adaptive pacing involved “living within physical and mental limitations imposed by the illness” as well as avoiding overexercising. In the CBT and graded exercise therapy treatment arms, patients were advised to avoid over-exercising, but, additionally, these therapies suggested procedures that the patient could perform into to achieve a gradual improvement in health.

    "So although all treatment arms of this study recommended avoidance of over-activity (i.e. an element of pacing), they also differed in the amount of effort invested by the patient during treatment.

    "My own research shows that the greatest non-specific predictor of therapeutic outcome is effort invested by the patient in the therapy. An important non-specific difference, therefore, between the treatment arms in this study is the extent to which the treatments provide hope and an effort-related plan of action for achieving recovery. We cannot tell whether it is the non-specific factors of hope and effort or the specific components of CBT and graded exercise therapy that are important for outcome. Perhaps the safest conclusion from this study is that therapy works – but just why therapy works remains as controversial for chronic fatigue syndrome as it is always has been for other conditions - see Wampold's The Great Psychotherapy Debate."
     
    Last edited: Mar 5, 2015
    Esther12 and Cheshire like this.
  2. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    In other words he blames in his patients and tells them they aren't trying enough when his therapy fails. I wish people were well enough to go and protest at his talk over how these therapies do not help ME patients and its a "real" illness. Obviously he is yet to understand its a post exertional illness and has many more symptoms then just "fatigue".
     
    Debbie23, jimells, Sean and 4 others like this.
  3. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    pardon me while I laugh out my ass at his hubris.
     
    Debbie23, jimells, ahmo and 4 others like this.
  4. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Nice acronym!
     
    CantThink and Aurator like this.
  5. Cheshire

    Cheshire Senior Member

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    How do one evaluate "the effort invested by the patient in the therapy"?

    http://www.bodyreprogramming.org/
    I am perplexed... What's the aim of putting such a claim as an headline?
     
    Last edited: Mar 5, 2015
  6. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    Hyland clearly never met me before I became ill! :p
     
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  7. worldbackwards

    worldbackwards A unique snowflake

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    They're very sure of themselves, aren't they. You might think they'd want to back that up with something.

    Or maybe not.
     
    Aurator, Sean, SOC and 1 other person like this.
  8. Esther12

    Esther12 Senior Member

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    Thank you.

    I've previously read some of Hylands placebo research, and thought it sounded like he was confusing the factors most likely to lead to patients reporting improvements in health with the factors most likely to lead to real improvements in health.
     
    Sean likes this.
  9. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Threaten to sue him and possibly for criminal liability if folk sicken or die under his regime.
     
  10. Snowdrop

    Snowdrop Rebel without a biscuit

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    Generally that would be my response too.
    But today after seeing this and the Wearden video for whatever reason I just got a sense of forboding.
     
  11. Aurator

    Aurator Senior Member

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    Indeed!

    It looks like Hyland belongs to a hardcore fringe of the BPS school, as if it wasn't hardcore enough already.
    Body reprogramming, eh? Are they sure they don't mean mind reprogramming? Fundamentally I think they do.

    The true rationale behind this egregious attempt to blame patients for their ongoing suffering is plainly stated in the opening words of the Br. Psych. Soc.'s own inarticulate apologia:

    "Behavioural therapies can help to successfully treat chronic fatigue syndrome, new research has suggested...the
    study revealed these treatments, as well as exercise, are among the most cost-effective ways to combat the condition, which is commonly referred to as ME...It was demonstrated that no other treatments for the condition - symptoms of which include tiredness, poor memory and a lack of concentration - proved as successful and cost-effective as behavioural and exercise therapies."

    The word "and" is telling. It reveals what is truly important to health providers.
     
    jimells, Sean, peggy-sue and 2 others like this.
  12. alex3619

    alex3619 Senior Member

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    Sigh. Where do we get off this merry-go-round? Anyone claiming the PACE trial was a well conducted study instantly loses credibility with me. Did they fail to read the study, or do they lack the training to properly evaluate it, or are they so biased they cannot see the problems?

    I wouldn't pay a bent halfpenny to see this guy, not even with free transport and a free lunch. Unless, of course, I was there to ask pointed questions.
     
    Wildcat, Sean, Valentijn and 3 others like this.
  13. chipmunk1

    chipmunk1 Senior Member

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    when you see a therapy contains the word 'reprogramming' you instantly know that it is pseudoscientific quackery.
     
    A.B., alex3619, Wildcat and 3 others like this.
  14. Desdinova

    Desdinova Senior Member

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    If its free why do i have to give an email address to get it? I'll pass on this thank you very much.
     
  15. user9876

    user9876 Senior Member

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    Its a website owned by Plymouth university. I find it disturbing that they are trying to get legitimacy by placing an NHS logo on their website
     
    Valentijn likes this.
  16. Gijs

    Gijs Senior Member

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    Psychologists use sick people with FM, ME/CFS/SEID to project there grazy subjective ideas created there sick minds.
     
    chipmunk1 likes this.
  17. wastwater

    wastwater Senior Member

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    Good grief
     
  18. Daisymay

    Daisymay Senior Member

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    http://www.bodyreprogramming.org/

    "The body adapts to challenging lifestyles, but sometimes this adaptation goes wrong. Chronic fatigue syndrome (CFS/ME) and fibromyalgia are examples of how this adaptation can create serious illness."

    This is stated as fact when it is merely a point of view and what's more a point of view which is invalidated by the scientific evidence.

    To promote a treatment whilst not keeping abreast of scientific knowledge would seem to be in contravention of the British Psychological Society code of ethics, similarly to practice out with the boundaries of area of competence:


    The BPS website states the following:

    http://www.bps.org.uk/system/files/Public files/bps_code_of_ethics_2009.pdf

    p16 2.3

    Standard of recognising limits of competence

    Psychologists should:

    (i) Practice within the boundaries of their competence.
    (ii) Engage in Continued Professional Development.
    (iii) Remain abreast of scientific, ethical, and legal innovations
    germane to their professional activities, with further
    sensitivity to ongoing developments in the broader social,
    political and organisational contexts in which they work.
    (iv) Seek consultation and supervision when indicated,
    particularly as circumstances begin to challenge their
    scientific or professional expertise.
    (v) Engage in additional areas of professional activity only after
    obtaining the knowledge, skill, training, education, and
    experience necessary for competent functioning
    (vi) Remain aware of and acknowledge the limits of their
    methods, as well as the limits of the conclusions that may
    be derived from such methods under different
    circumstances and for different purposes.
    (vii) Strive to ensure that those working under their direct
    supervision also comply with each of the requirements of
    this standard and that they are not required to work
    beyond the limits of their competence.
     
    SilverbladeTE likes this.

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