The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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PLOS One: Supporting the right to constructive criticism

Discussion in 'Latest ME/CFS Research' started by oceanblue, Sep 12, 2011.

  1. oceanblue

    oceanblue Senior Member

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    Apologies if this has been posted elsewhere, but I think this comment is very relevant to our particular forum:

    That's very good news, and I think much needed clarification. As they say, the whole idea of open access to research is that it opens it up wider scrutiny, scrutiny that often seems to be lacking within the established CFS research community.

    Wouldn't it be nice to see Richard Horton endorse the sentiments expressed by PLoS One today?

    Thanks to mecfsforums for the original post.
     
    wdb likes this.
  2. Sean

    Sean Senior Member

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    My position is much the same as Sickofcfs.

    Threats of violence (and of course any actual violence) are totally unacceptable and should be rejected and condemned by all patients, and any (genuine) threats should be properly prosecuted.

    On the other hand, I have yet to see any real evidence that these threats against Wessely et al have actually occurred at any serious level. So I strongly suspect that the claims made by Wessely et al about these (alleged) threats are little more than self-serving hyperbolic propaganda, and particularly nasty propaganda at that.

    I am very suspicious in particular about the timing and apparently co-ordinated nature of the claims, and believe it is a quite deliberate campaign to distract from the truly shitty (and, frankly, fraudulent) PACE results, and the general failure of that massively over-hyped CBT/GET behavioural model, upon which so many reputations and careers have been built and egos indulged.

    Ironically, the only threat that I know of against any researcher that has actually been substantiated (in a court case) is against Ellen Goudsmit, who is also a patient, and who has done more for our cause than almost anybody.
     

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