The End ME/CFS Project: History Taking Root
The history books record that in the nineteenth century Louis Pasteur formulated a “germ theory” of microbes as the causative agents of disease, and thus revolutionized medicine. His findings, along with his contemporary, John Snow (who linked cholera to infected water supply),...
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Please tell me your famvir/famciclovir story

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by shastamax, Mar 31, 2013.

  1. shastamax

    shastamax

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    San Francisco Bay Area
    I just got diagnosed with reactivated EBV. My first 250 mg famvir dose caused insomnia. I'm supposed to take it 2X per day. I'm wondering about side affects and successes with this drug. Thanks!
     
  2. Hugocfs

    Hugocfs Senior Member

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    U.S.A.
    No side effects here. Or help with virus titers. Currently taking 250mg 3X/day generic. Wondering why I am even taking it and the inosine. Will have to contact my cfs doctor soon to ask for a change in course of treatment since this one isn't doing anything.
     
  3. Marianarchy

    Marianarchy

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    I took 2500 mg of Famvir daily for 7 months and my viral titers didn't go down at all.
     
  4. Ruthie24

    Ruthie24 Senior Member

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    New Mexico, USA
    I'm taking 8,000mg famvir (generic) daily, but have only been on it a little over 3 weeks.

    Initially I started with 500mg 4x/day. It caused migraines, nausea, body aches, and increased joint pain. After about 4-5 days, it calmed down. I gave myself a couple days and then increased to 1,000 mg 4x/day. Same thing happened with the side effects. And, again they went away after about 3-4 days. When I increased to 1500 mg 4x/day, I didn't have the reaction, nor did I when I went up to the 2,000 mg 4x/day. It has caused some GI distress but is tolerable as long as I eat with it.

    Not sure if it's just the natural course of the disease, or if it was the IV saline that I started around the same time I started the Famvir, but I have been more functional the past couple weeks than I've been in the past 3 months when I was in a major relapse.
     
  5. aquariusgirl

    aquariusgirl Senior Member

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    don't want to hijack this thread... but I thought I read that dr dantini & dr rey were using high dosages of famvir in lieu of valcyte...

    I read that dantini is using 800mg x4 of acyclovir a day...Is that right? Anyone know what dr rey is using? I read dr klimas is using 800mg x2 a day.. but that could just be patient specific.

    Thanks
     

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