Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Mar 23, 2016.
I just wanted to bump this as Mary and #MEAction would like to deliver it to NIH soon and it would be great to gather a few more signatures before submission.
Signed. I strongly agree that the study group be as diagnostically "clean" as possible. My one concern is that the complexity of obtaining a diagnosis can sometimes cause patients to be misdiagnosed or labeled with somatoform, personality, or other diagnoses that would then potentionally keep them from being able to participate.
That being said, since it's only 40, finding a good cohort that may have escaped these injustices may not be too difficult and would hopefully strengthen the integrity of the results.
You can also try a Google Site Search
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