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Please sign the MEA's petition asking NICE to review the guidelines for ME (CLOSING MONDAY JULY 24)

Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Jul 10, 2017.

  1. Countrygirl

    Countrygirl ME is not MUS

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    Perhaps someone should remind Professor David Haslam of his statement here:


    [​IMG]
     
    Binkie4, lemonworld, MEMum and 17 others like this.
  2. Valentijn

    Valentijn Activity Level: 3

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    It's now up to 4,670 signatures. 330 more signatures are needed to hit the big 5K.
     
    MEMum, Hutan, Invisible Woman and 6 others like this.
  3. Barry53

    Barry53 Senior Member

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  4. Barry53

    Barry53 Senior Member

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  5. Countrygirl

    Countrygirl ME is not MUS

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    :balloons::balloons::balloons::balloons::balloons::balloons:5 000 !!!!!!:balloons::balloons::balloons::balloons::balloons::balloons::balloons:
     
    MEMum, John Mac, Hutan and 6 others like this.
  6. dangermouse

    dangermouse Senior Member

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  7. Barry53

    Barry53 Senior Member

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    Practising what they preach ... that would be good wouldn't it. Would even help people believe they really mean it when they claim "National Institute for Health and Care Excellence".
     
    MEMum, Jan, Valentijn and 5 others like this.
  8. charles shepherd

    charles shepherd Senior Member

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    Just back from London where we had a really excellent meeting at the House of Lords with Dr Diane O'Leary - who is an expert in medical ethics.

    The MEA petition is now heading towards 6,000 signatures in less than 48 hours!

    CS
     
    Somer, MEMum, aimossy and 20 others like this.
  9. Countrygirl

    Countrygirl ME is not MUS

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    :balloons::balloons::balloons::balloons::balloons::balloons:6000!!!!!!!!:balloons::balloons::balloons::balloons:
     
    MEMum, Barry53, DoggerFisher and 10 others like this.
  10. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    and in just over 2 hrs, another 427!
     
    MEMum, dangermouse and slysaint like this.
  11. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    @charles shepherd , why not leave this petition open, instead of closing it after 7 days? I can understand that you have a limited time frame to get the MEA's response to the NICE guidelines in but you could easily take a screenshot of the petition at a particular time of your choosing, while leaving the petition to run and continue to amass signatures so as to strengthen any argument for changing the guidelines at a future point in time.
     
    Missense, MEMum, aimossy and 12 others like this.
  12. DoggerFisher

    DoggerFisher

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    Signed and shared with the Well-niverse (they should notice it's my first post on FB for a couple of years!!)
     
    Hutan, MEMum, AndyPR and 7 others like this.
  13. charles shepherd

    charles shepherd Senior Member

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    This is being discussed now that the deadline for stakeholder consultation responses has been extended

    I see that we are now heading for 7,000 signatures - in only three days!

    This must be some sort of record for an ME/CFS related petition….

    CS
     
    Missense, Hutan, lemonworld and 17 others like this.
  14. Solstice

    Solstice Senior Member

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    Maybe people are getting more aware of our harms and where it comes from?
     
    MEMum, MeSci, Sean and 2 others like this.
  15. charles shepherd

    charles shepherd Senior Member

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    Now up to 6380 signatures

    Feedback indicates that it is now ipad friendly to sign - but it may be difficult to add comments on an iPad…..

    CS
     
    MEMum, MeSci, dangermouse and 2 others like this.
  16. arewenearlythereyet

    arewenearlythereyet Senior Member

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    just a quick correction

    6830....Oh now 6840 :lol:
     
  17. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    All due respect, maybe in terms of progress in just 3 days, but you need to go some to beat MEActions 10k+ on, I think, the call to retract PACE, and the 30K+ that Mary Gelpi's call to the NIH to increase funding got.
     
    Invisible Woman and MEMum like this.
  18. charles shepherd

    charles shepherd Senior Member

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    Yes, but I was referring to 7000 (we are almost there!) in three days….

    Looks as though we should reach 10,000 at some point

    30,000 looks rather ambitious!

    CS

    Just seen that we have broken the 7000 barrier in less than 3 days...
     
  19. dangermouse

    dangermouse Senior Member

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  20. MEMum

    MEMum Senior Member

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    7163!
     
    Hutan, MeSci, dangermouse and 2 others like this.

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