1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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PLEASE PLEASE can someone summarize last nights meeting!!!!!!!!!!!!!

Discussion in 'General ME/CFS News' started by coxy, Jan 23, 2010.

  1. usedtobeperkytina

    usedtobeperkytina Senior Member

    Clay, Alabama


    Skeptic means you question the results. That's find, we need skeptics.

    I don't know about the tests in relation to false positives. Mikovitz said the people getting tested now by them may get false negatives, but not false positives. (Isn't that what she said on Jan. 22?)

    I think the contamination issue has been addressed. Someone else want to give the details? I don't remember. But I know she addressed it on Jan. 22.

    Did she say she ran each sample four times and take four different samples from each person? Again, I don't recall what was posted about what she said. But I think it was a test run on four different draws from each patient. And therefore, each sample tested once.

    Now, I wonder if NCI and CC also also tested each of the four samples before they were able to "find" it.

    The reason I think she knows more about the nature of the virus than she is saying is because of all the effort they went into looking for it. That reflects some knowledge of how the nature acts. Remember, even when they didn't find it by the firs testing method, Peterson said they found it in almost all the other individuals by doing other tests.

    I would be interested in knowing what Coffin thinks about whether the tests on four draws of each patient makes a difference, since he gave comments in the journal and commented at CFSAC about how good it was as an initial study.


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