1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Please help with this!

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Andrew, Nov 13, 2013.

  1. Andrew

    Andrew Senior Member

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    If you have not sent letters, please do it now. Signing the petition is nice, but it is not the same as your government rep or the President getting an email from you.

    Every email counts. Every email is a tap on the shoulder of your rep that says "Hey, you need to deal with this."

    Here are simple instructions: http://www.prohealth.com/ME-CFS/lib...ce=EM100913C&utm_medium=em&utm_campaign=MECFS

    And in case you need it, here is the letter from 50 experts. https://dl.dropboxusercontent.com/u/89158245/Case Definition Letter final 10-25-13.pdf

    It is not hard to do. Just copy the sample letter and make few changes. Or as I did, copy the sample letter and make a slew of changes.

    Do it now! Get it over with! Help save us all!
     
    justinreilly likes this.
  2. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Left Coast
    It would help if you said what it was for in your Subject or somewhere in the post. IMHO
     
  3. Andrew

    Andrew Senior Member

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    It's along the same lines as everything else in this section where we are posting (Institute of Medicine (IOM) Government Contract). We are trying to get it canceled because it circumvents the expert definition that has received nothing but support in this community. You can read more about it in this section here, or a shorter explanation here: http://www.prohealth.com/ME-CFS/lib...ce=EM100913C&utm_medium=em&utm_campaign=MECFS
     
  4. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Left Coast
    Sorry. I didn't pay attention to the section it was in.

    I already emailed and signed stuff. It's on every forum out there.
     

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