August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
Discuss the article on the Forums.

Please help with germany testing

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by douglasmich, May 9, 2016.

  1. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    Hello.

    I have severe health issues that are invisible to the normal person. I have found the best doctor in my area who is a functional doctor with an interest in infections. I have severe connective tissue issues, fatigue, neurological problems. The whole works basically.

    He has just done a HUGE amount of tests in AUstralia. Nothing came back.

    He says my last hope is to do tests in germany. He mentioned things like EBV etc.

    Does anyone know anything about this? I am FREAKING out over this. I know i have some sort of infection as i have recovered on a fever. But if i cant get a test to prove it im basically screwed !

    thanks heaps
     
    Mel9 likes this.
  2. adelheid55

    adelheid55 Senior Member

    Messages:
    361
    Likes:
    553
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    13,980
    Likes:
    21,295
    Albuquerque
    You might want to read TiredSam's blog on his recent visit there.
     
  4. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    Australia is not equipped for testing apparently. He said Germany has the best detection techniques
     
  5. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    So they send my blood to a German lab
     
  6. adelheid55

    adelheid55 Senior Member

    Messages:
    361
    Likes:
    553
    OK, so you don't have to travel to Germay which would have been very exhausting and expensive.
    I'm not sure what you would like to know. Your blood will be tested for EBV. Our daughter's blood was tested for Borrelia by a German lab and it was OK.
    Then her blood was tested once more in order of Dr. de Meirleir (a German as well) and it was positive.
    This is the lab
    http://www.arminlabs.com/de/services
     
    merylg and justy like this.
  7. justy

    justy Senior Member

    Messages:
    5,132
    Likes:
    11,074
    U.K
    Yes I agree with adelheid55 - most likely he means Arminlabs or infectolab - many people send their blood there for testing from all over the world - their website is useful and they will respond to emails with help etc.
     
    merylg likes this.
  8. Mel9

    Mel9 Senior Member

    Messages:
    366
    Likes:
    844
    NSW Australia

    In Australia our blood can now be tested for many pathogens including Borrelia ans other Lyme co-infections
    At the Australian Ricketsia Reference Laboratory in Geelong, Victoria
     
  9. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    I did all the australian tests for lyme etc and was all negative.

    He mentioned 6 or 8 tests in germany. EBV was one.
     
  10. Mel9

    Mel9 Senior Member

    Messages:
    366
    Likes:
    844
    NSW Australia


    Where were your Australian tests done?
     
  11. Kati

    Kati Patient in training

    Messages:
    5,425
    Likes:
    19,316
    Australia does not test for viral titers, as faras I know. CAnada does not measure titers unless you have HIV or post bone marrow transplant. Moreover HHV-6 is not considered pathogenic. It's a sad state of affairs.
     
  12. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    2 differnt pathologies. Can't remember names.

    The German tests will cost 500$ i think...
     
  13. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    it was armin labs
     
  14. adelheid55

    adelheid55 Senior Member

    Messages:
    361
    Likes:
    553
    Arminlabs was the one who found out our daughter had borrelias. As I said above, another German lab tested negative but AL tested very weak/borderline.
     
  15. douglasmich

    douglasmich

    Messages:
    311
    Likes:
    121
    Ok.

    I dont think i have lyme, but im quite certain i have viruses. hopefully they pick them up
     
  16. Luz Umami

    Luz Umami

    Messages:
    3
    Likes:
    0
    @adelheid55

    i'm from germany as well and just saw that you travel to belgium for treatment. are you living near to belgium or haven't you found a good doctor in germany? i'm asking, because i'm searching for someone who knows how to treat mold illness, and other infections.

    thanks and liebe grüße

    luz
     
  17. adelheid55

    adelheid55 Senior Member

    Messages:
    361
    Likes:
    553
    Our daughter has seen lots of doctors and has had many tests done. All that German doctors said was that she was depressive and should take antidepressants. She had MRI's and her liquor tested. I could see the latter wasn't OK, but was told I was wrong about this.
    Now we have a DR., who knows about blood results and infections. I think this Dr. knows about molds as well as he tested our daughter for this.

    Liebe Grüße zurück
    Adelheid
     
  18. Luz Umami

    Luz Umami

    Messages:
    3
    Likes:
    0
    dear adelheid,

    thanks a lot for your reply. :)

    he really tested her for mold? that's unbelievable. i do see 2 functional doctors in germany at the moment, they tested me for lyme etc., but told me that there's no testing for mold available in germany. but i found out that there's a belgium lab (again belgium ;-)) which does all the tests for mold illness. i sent them an e-mail today, asking if there's a doctor in germany who orders mold blood testing.

    are you pleased with meirleirs' work? and how long did you have to wait till your first consultation? oh my, belgium is not near to where i live but if he knows how to treat mold...

    lg

    luz
     
  19. adelheid55

    adelheid55 Senior Member

    Messages:
    361
    Likes:
    553
    Hi Luz,
    yes, he tested her fot molds. What are functional doctors in German?
    Up to now our daughter isn't better. But she is taking her medicines since end of February which is a short time because she has been ill for a very long time.
    She had to wait 3 months for her firs appointment. And Upper Bavaria isn't near to Belgium.
    We always go there with our motorhome so she can rest a lot.
    Which Bundesland are you from?
    LG
    Adelheid
     
  20. Luz Umami

    Luz Umami

    Messages:
    3
    Likes:
    0

See more popular forum discussions.

Share This Page