The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Please help raise awareness on CNN following Norway breakthrough

Discussion in 'General ME/CFS News' started by jenmca, Nov 6, 2011.

  1. jenmca

    jenmca

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    Hi,
    Please read and help raise further awareness on CNN. Since the norwegian breakthrough I felt this was a great opportunity for us to raise further awareness on this horrendous illness we suffer from and also the neglect by our governments and the medical profession. CNN has a huge platform if this story could be covered, there is a possibility if we have enough views and the CNN staticians can see the interest in this story. I had to upload an audio file as this would only be accepted in the format before I could upload. So far it has been viewed over a 1000 times and shared over 100 times but we need more views and shares. Please support and help to raise awareness further. People have also commented on the site which has been wonderful because it lets people know who are reading this to hear our stories and our personal suffering and what it is like to live with such a horrendous illness. If you can help I am so grateful and appreciate very much your support as I know hoew difficult it is for us to even give a little time when we feel so ill. Here is the story I posted and the link to the site for our views to be registered, you will also be able to listen to the audio file here too and leave a comment if you wish to do so. Please also share the link, the more voices that are heard the more they will hear us or someone, somewhere who can help us may here us. Never give up hope or our fight for justice and a cure. Love Jen.

    CNN POST AND VIDEO

    http://ireport.cnn.com/docs/DOC-693784

    I am a M.E patient who suffers from a chronic and cruel disease, this disease will not go away and neither will my severe pain. 17 Million people suffer from this illness worldwide and the number is growing but so many people and the medical profession know nothing much about it. Remember Aids and the story that followed from that when it was first covered. Then please help us in covering news on M.E. Norway has just released a public health apology from their government apologising to M.E patients, here is a quote from it "I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that." M.E is a horrendous illness every day your body is in so much pain and you feel that you are dying every single moment of each day and it just never goes away. There is no funding, hardly any research therefore there are hardly any specialists to help and care for anyone with M.E. This disease has been said by a doctor who has researched M.E that a person with M.E feels like a person who is dying from Aids or with cancer a month before they die.



    Can you imagine living your life daily in that level of pain? can you imagine a child suffering like this? This disease is spreading and for some reason the governments want this kept quiet including UK Government. I ask why? Maybe the news should ask why? You have the platform and you have a story, please help us to end this suffering, please.



    Here is a links to Norway's news about a breakthrough they have found for M.E and then next a link for their governments public apology to their M.E patients for their lack of care.



    http://www.tv2.no/nyheter/innenriks/helse/alt-om-megjennombruddet-3615866.html

    http://www.euro-me.org/news-Q42011-003.htm



    Thanks you for your time in reading this message. I live in hope and prayer along with 17 million women, men and children that someone somewhere will help us.



    Kind Regards



    Jen
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    I have shared and recommended this audio/website.

    GG
     

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