Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Please help me find an IOM-related resource

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Andrew, Dec 19, 2013.

  1. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    I've been searching and searching for this and can't find it. What's worse, is I think I asked about this before and someone gave me a link. Either in email or here. I'd search more but I keep drifting.

    Can someone give me a link to the actual CFSAC recommendation. The one that HHS is misquoting as an excuse to hire the IOM.
     
  2. Esther12

    Esther12 Senior Member

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    Sorry, can't help. Sounds like the sort of thing someone here should have a copy of though.
     
  3. Denise

    Denise Senior Member

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    This is the list of highest recommendations :

    http://www.hhs.gov/advcomcfs/recommendations/cfsac-recs513.pdf
    Clinical CFSAC recommends:
    •
    that you will promptly convene (by 12/31/12 or as soon as possible thereafter) at least one stakeholders’ (ME/CFS experts, patients, advocates) workshop in consultation with CFSAC members to reach a consensus for a case definition useful for research, diagnosis and treatment of ME/CFS beginning with the 2003 Canadian Consensus
    Definition for discussion purposes. (10/12)

    Hope that helps
     
    Andrew and justinreilly like this.

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