Hi everyone, I could really use some advice. I have been sick for 26 months, housebound for 16 months. I get worse every month and, even though I feel like I'm doing less and less, I still keep feeling worse and worse. I am now in bed about 16-20 hours a day, I spend the rest of the time sitting on the couch. I walk 300-600 steps a day. I haven't been outside in months. I am absolutely panicked and desperate to keep what little functioning I have to stop more muscle and bone loss, to keep my circulation and lymph going, to keep embolisms and worsening dysautonomia symptoms at bay... My worst symptoms are a horrific headache that never goes away, sleep dysfunction, muscle aches and stiffness, spine and neck pain, blurry vision, terrible ringing in my ears, brain mush, sore throat ,weak voice. I can't tell what helps and what doesn't help anymore because I always feel terrible. I wonder if I should just stay in bed for months and have my husband do even MORE for me? If I should stop all reading or watching tv? I also wonder if I should try stretching more or a bit more walking (I'm talking a few hundred more steps a day, not a walk out side or anything) to help this pain and my sleep? I don't know if I should stop all supplements or try more drugs? I'm so scared and don't know which direction to turn and can't research and process info without getting very overwhelmed. My head hurts so badly, I break out in sweats. Any advice would be appreciated. I feel like it is only a matter of time before I can't sit up or speak or eat anymore and I am terrified. Thank you!!