The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Please Donate to Keep ME Advocacy Alive!

Discussion in 'Fundraising' started by caledonia, Oct 31, 2014.

  1. caledonia

    caledonia

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    Cincinnati, OH, USA
    HHS Made The First Move and We Responded

    The IOM. The P2P. The CDC multi-site study. A year ago, the HHS launched a series of redefinition efforts for ME/CFS designed to impact us negatively for decades.

    This highlighted more than ever the need for patients to get involved in advocacy.

    Accomplishments

    Seven months ago we launched ME Advocacy.org. We have rapidly become a community of over 550 members and 4000 social media contacts, all who are interested in taking action on issues facing ME patients.

    Together, we have supported 19 advocate campaigns.

    If you believe this website is a valuable resource and wish for us to continue assisting patients and stakeholders like you with advocacy, publicity and community building efforts, please donate.

    Future Goals
    We have very exciting plans to hire a public relation firm to help us bring national attention and sympathy to our cause - including demonstrations and appearances on national tv, radio and press. But we can’t continue unless we get site operations funded first.


    Please Donate
    The campaign runs now through November 6th, 2014.

    Click here to donate: https://meadvocacy.nationbuilder.com/donate
     
  2. Sasha

    Sasha Fine, thank you

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    I see you've already got $1,450 of the target of $2,000 raised - this is very doable.
     
  3. caledonia

    caledonia

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    Bob and Sasha like this.
  4. caledonia

    caledonia

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    Cincinnati, OH, USA
    Update and Last Call for Donations - Thursday Nov. 6

    Many thanks to everyone who has already donated. We are just $400 short of our goal of $2000. If you've been meaning to donate and haven't gotten around to it yet, this is it.

    Please help us continue to fight the IOM and P2P. The deadline to donate is Thursday November 6 at midnight PST.

    Please share this message with your network (email, forums, Facebook, Twitter).

    https://meadvocacy.nationbuilder.com/donate
     
  5. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
    @caledonia no donations needed after the Nov 6 deadline?? This was one of the many tabs I don't return to in a timely fashion...thx.
     
  6. caledonia

    caledonia

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    Thanks for remembering us! Of course, we can always use donations, but we did well enough that I felt it was ok to start on the next campaign, which is a very exciting national PR campaign to put even more pressure on the HHS.

    The new page is here: https://meadvocacy.nationbuilder.com/donatepr

    I haven't quite starting sending out promo yet, but it should be working and able to accept donations. Let me know if it doesn't.
     
    ahmo, catly and Bob like this.
  7. catly

    catly Senior Member

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    @caledonia I read you plan, it is very ambitious, but I think it's probably too late the stop any of these inaitiatves (IOM, P2P and CDC study). Perhaps what we need to be preparing for is dealing with the outcome of all of them.
     
  8. caledonia

    caledonia

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    Yes, that is also part of the plan. The PR can be used to counteract whatever HHS is disseminating.
     
    Nielk and catly like this.

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