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PLEASE COMMENT:Research overlooks sufferers may have several illnesses not one or two

Discussion in 'Action Alerts and Advocacy' started by drjohn, Sep 27, 2011.

  1. drjohn

    drjohn Senior Member

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    LETTER PUBLISHED: Research overlooks that sufferers may have several illnesses not one or two (Bristol Evening Post 27 September 2011)

    PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING SITES AND USE IN NEWSLETTERS

    http://www.thisisbristol.co.uk/Rese...rs-illnesses/story-13410821-detail/story.html

    Short link: http://tinyurl.com/5szwxmu

    May I suggest that as many as are able send an e-mail in reply, expressing a variety of opinions. You may also leave a comment below the letter online -- Trolls stay in your caves, please.

    I have started comments section with this one,

    Thank you very much for publishing this letter about the crucial issue of separating M.E. (Myalgic Encephalomyelitis) from "fatigue" and its bookends "Chronic" and "syndrome", which so many of us believe is impeding progress towards recovery of people who have been ill for decades, not only M.E. sufferers but those with other illnesses who have been bundled as CFS. Treatment recommendations such as Cognitive Behaviour Therapy (CBT) and Graded Exercise Therapy (GET) have been proved ineffective or even harmful and it has been an open door for unregulated charlatans' unproven and costly interventions.

    I have forwarded the web link to fellow sufferers and researchers worldwide, including Dr Crawley, encouraging as many as can manage to contribute a variety of opinions. I have suggested that Trolls stay in their caves and we only have intelligent contributions on the basis of which well-designed research can proceed. Thanks again, Evening Post, for allowing a platform for the standard of debate rarely seen in newspapers for general readership but reserved for scientific journals to which fewer have access.

    [Please don't take the bait of any Trolls, or be one yourself. Take some time to compose your comment, don't send in high emotion and let us make a difference.]

    Best wishes
    John
    drjohngreensmith@mecommunitytrust.org
    M.E. Community Trust.org
     

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