Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Playful (yet sad) skit fr San Fran MillionsMissing

Discussion in 'General ME/CFS News' started by RivkaRivka, May 27, 2016.

  1. RivkaRivka

    RivkaRivka Senior Member

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    Three Decades of Government Neglect Summarized in Five Minutes
    Playful skit performed at the San Francisco MillionsMissing protest
    By Rivka

    == DECADE #1: The 1980s ==

    PATIENT 1: Whoooa, what is happening? I am an average person attending school, working or traveling the world. Suddenly, after a flu-like illness, I'm really sick and never getting better. In fact, lots of people in my Lake Tahoe town in Nevada are sick too. Call the Centers for Disease Control!

    PATIENT 2: Hey, the same thing is happening 3000 miles away on the other side other of the country, here in rural upstate New York. Call the Centers for Disease Control!

    GOVERNMENT: Ta da! We are the Centers for Disease Control coming to the rescue! You can depend on us! Let's see (looking up, looking down). Nope. It's an over-reaction, probably made up, or an emotional imbalance. Move along now. (shoo shoo-ing imaginary people away) Nothing to see here.

    PATIENT 1: Help, it's real. I'm too debilitated to work. I'm stuck in bed.

    GOVERNMENT: Okay, okay, (sarcastic) so it's real. (laughing to themselves) Real enough to call it some kind of fatigue (finger quotes) "syndrome." How about "chronic fatigue syndrome!" With a name like that, everyone will take you seriously…. (pause) NOT!!! [AUDIENCE BOOS]

    == DECADE #2: The 1990's ==

    PATIENT: It's been ten long years. I've lost everything. My savings, my friends, my family. Help me, my government.

    GOVERNMENT: Ta da! We are the National Institutes of Health coming to the rescue! You can depend on us. We know just what to do! We will fund some research that says… (thinking about it) It says…. (still thinking) It says you can't handle stress! That you are too scared to leave your home! That you have personality disorders! (feeling proud/accomplished because of their research) [AUDIENCE BOOS]

    PATIENT: Why would you psychologize this illness?

    GOVERNMENT: (Shrugs) That's the best way to make sure no one takes you seriously. This is how we deal with diseases we want to bury.

    PATIENT: Please just do some legitimate research.

    GOVERNMENT: Let's see. Calculating… Calculating… We have an National Institutes of Health budget of $30 billion. 30 billion! How about we give you… calculating… calculating… $5 million dollars a year. After all, translated into Washington DC terms $5 million dollars equals… a few pennies. So we'll dedicate a few pennies to your disease. Sound good? [AUDIENCE BOOS]

    PATIENT: Help. My government has abandoned me.

    == DECADE #3: The 2000's ==

    PATIENT: It has been twenty long years. Nothing has changed. I'm still desperately sick.

    GOVERNMENT: Wait! Ta da! Have no fear, we are the government and we have the answer. Wait till you hear this. Ready? Ready? (Triumphant) Graded exercise! You can get better with exercise! We imported that one from England (very proud of themselves). [AUDIENCE BOOS]

    PATIENT: (rolls her eyes) I can't even walk to the mailbox. Will you please dedicate more money to research?

    GOVERNMENT: No, you will still get only $5 million dollars per year. That's about the same amount we give Hay fever research, and your disease doesn't debilitate any more than hay fever, does it? Anyway, rest assured, we'll educate aaaaaaall the doctors of the whooooole country and tell them how graded exercise is a goooooood treatment for your disease. [AUDIENCE BOOS]

    == THE FUTURE: HOPEFULLY REALLY REALLY SOON, LIKE THIS AFTERNOON ==

    PATIENT: It has been 30 long years. I'm so sick. Three decades of my life lost to this disease.

    GOVERNMENT: (serious for the first time) What? That is terrible. We now see how it is an abomination how we have treated you for three decades. We now see we need to dedicate $250 million dollars per year to this disease. We now see we have to improve our medical education so doctors will believe you are sick. We now see we have to make a serious commitment to urgently address Myalgic Encephalomyelitis.

    We are sorry. You and all ME patients deserve an apology for our neglect and our attempts to sweep 1 to 2.5 million ME patients under the rug.

    PATIENT: Finally! My government is acting the way it should: Taking care of its sick and disabled citizens.

    ALL: High five!!!! [AUDIENCE CHEERS]
     
  2. Yogi

    Yogi Senior Member

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    Great sketch @RivkaRivka. Has anyone got this YouTube?

    Thanks for managing to go the protest and organising it. Loved scrolling through your twitter feed with all the photos of San Fransisco.
     
  3. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Toronto, Canada
    I can also see the skit as an animated video for advocacy purposes targeting US public and policy-makers.

    Also add on a link for people to donate / sign petition / take action.

    This place specializes in animated 'explainer' videos for reasonable prices: http://promoshin.com/
     
    panckage, waiting, Jennifer J and 2 others like this.
  4. taniaaust1

    taniaaust1

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    I loved this, thou cant see that end coming any time soon.

    I . esp loved that part where it mentions they try to make out we have psych issues and personality disorders and sure due to that that I did have that happen to me. I got diagnosed with borderline personality disorder cause i was feeling suicidal re this disorder which they didnt think I should be as they wouldnt believe how ill I was and how I get treated due to it and cause I was feeling abandoned cause of how people treat us. Feeling abandoned is one of the things they diagnose BPD on, they dont care if you really have been abandoned. Many others just get the depression label lumped onto them as an excuse for their illness.

    So many side pieces could be added to this skit if anyone wanted to make it longer, its great.

    I'd love to take part in such a skit if anyone in my area wanted to do one. I think we need somethings like this online to help others start to ask the same question on what the heck are our governments doing as we do. We need a great advocacy program and skits could be the way to go.
     
    Jennifer J, RivkaRivka and MeSci like this.
  5. RivkaRivka

    RivkaRivka Senior Member

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    @Yogi Yes, there is a youtube video of the skit. I have to go ask someone for the link...
     
  6. RivkaRivka

    RivkaRivka Senior Member

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    @ScottTriGuy What a great idea! I don't have it in me to do this. Do you?
     
  7. RivkaRivka

    RivkaRivka Senior Member

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    @taniaaust1 i'm so sorry this happened to you. please feel free to use the skit in your area, if you want. what area is that? i could try to come help you, but i'm not too too mobile.
     
  8. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Sorry, no, I'm pre-occupied with the Canandian govt, though I suppose it could be adapted to reflect Cdn stats...
     
    RivkaRivka likes this.
  9. RivkaRivka

    RivkaRivka Senior Member

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  10. taniaaust1

    taniaaust1

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    Hi rivka, you do some great work. Im in Sth Australia and completely homebound if I havent got a support person to be with me to be able to go safely out
     

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