The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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PIP Review form!!!

Discussion in 'Finances, Work, and Disability' started by tinacarroll27, Jun 12, 2017.

  1. tinacarroll27

    tinacarroll27 Senior Member

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    Just got the PIP review form through the post today and it's sent my stress levels through the roof!!! Probably going to have an assessments in July now. I am feeling so depressed over been in a crash at the moment it's going to be a challenge filling it in but I guess I will have to summon up the energy from somewhere. I can't afford to lose PIP as I just lost ESA last month and felt too ill to challenge it and couldn't face an appeal. I am going to try reapplying to ESA due to my crash and hopefully GP will write me a letter confirming my condition has got worse. It's all just so exhausting and stressful.
     
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  2. trishrhymes

    trishrhymes Senior Member

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    hi @tinacarroll27 , I'm so sorry to hear you're being put through this trauma again.

    Have you tried contacting your local CAB?

    I had to apply for PIP recently to replace DLA, and the CAB expert visited me at home and filled in the form for me. I don't think I would have done it myself - I've found it so stressful and exhausting in the past. I'm still waiting to hear what they are going to do next. They should also be able to help you re-apply for ESA.

    Try also to get your GP to write a report that emphasises what you can't do in daily life rather than just your diagnosis, and if possible, to insist you need a home visit for your medical, if you can't get to the centre.

    Good luck and keep us in touch. .
     
  3. Hell...Hath...No...Fury..

    Hell...Hath...No...Fury.. Senior Member

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    @tinacarroll27 so sorry you're going through this, i'm dreading my PIP transfer (i'm not even on it yet, feel like one of the last people still on DLA)

    I second that you should definitely get the CAB to do your forms for you. They might be able to do the ESA at the same time. Just get them to do the lot and get it all done at once, that way you'll be saved from potentially two medicals. I know they say they aren't linked, but whenever i've recently had a medical for one, i never need to do one for the other)

    I can't recommend Welfare Rights, if they're available where you live. I'm pretty convinced they're working for the opposition after my last experience with them but you can't go wrong with the CAB.
    Just hand it all over to them, it will reduce the stress by half instantly knowing someone is fighting your corner for you.

    Best of luck, keep us posted :hug:
     
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  4. jace

    jace Off the fence

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    CAB advisors are variable - some are great, well trained, do a good job. Other, not so much. The CAB funding was decimated, hence the shortage of trained, paid staff. Welfare Rights people, the same thing applies. Check out what help there is in your area with this link: http://england.shelter.org.uk/get_advice/advice_services_directory Put your big town in the box if the postcode search still isn't working. If you do get someone else to do your form for you, give them a photocopy. That way if they make a total mess of it you've still got a chance to get it right.
    The PIP review form asks are you ... better... the same.... worse. Don't let the form lull you into a false sense of security - it's not enough just to tick the boxes. You need to explain what the problems are and why you have them, eg
    "Because of the weakness, dizzyness and pain caused by my ME I am not safe in the kitchen. I have dropped pans of hot water over my legs, I have cut myself and burnt pans. Due to this I am not allowed to cook any more, and my friend/partner/daughter does all the cooking now"

    Include evidence with your form - whatever they say, include a couple of things from the previous claim and one or two new things such as
    *Doctor's letter
    *Patient Summary print out from the GP surgery - usually free
    *Specialist letters - from their secretary or in your GP notes file. Ask specialists to copy you in to their reports to your GP
    *Prescription list - will also be in your patient summary
    *Occupational Therapist report or letter
    *Social Care report or letter
    *Photos of you in trouble and adaptations you've had to make to cope,
    *Letters from people who know how your conditions affect you - family, friends, carers <<< very valuable <<<
    *A diary of a week, or just a day in your life, showing how your illness stops you living normally <<<also great <<<
    Diary link: https://drive.google.com/open?id=0B40tiBNJjL5XUk1kd0ZwUGVadlU
    *A list of your symptoms - refer to symptom lists of your illness/es
    *Proof you do internet shopping - keep the receipts
    *Receipt from the Chemist for home delivery
    *A timeline of your illnesses, work, and benefit claims.

    If you can write your long answers on a computer (name and NI number on the top of each page) you can print these out and attach them to the form.
    Benefits and Work guides are great, membership costs <£20 a year (they regularly discount membership), and is worth every penny. Use their guides and you won't go far wrong.
     
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  5. charles shepherd

    charles shepherd Senior Member

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    Basic information on PIP applications, paperwork, medical assessments, reconsiderations and appeals from the MEA:

    1 Notes on House of Lords meeting with Dr Ian Gargan, Chief Medical Officer at Capita, to discuss DWP medical assessments:


    http://www.meassociation.org.uk/2016/10/pip-medical-assessments-with-capita-meeting-at-house-of-lords-next-tuesday-21-october-2016/

    2 PIP checker from the DWP

    The DWP has produced a useful website checker that you can fill in to find out if you can claim PIP and what will happen if you apply for PIP
    You can use this tool to check:

    • if PIP affects you or someone you care for
    • how PIP will affect your child
    • when you can make a new claim for PIP or you are transferring from DLA to PIP

    https://www.gov.uk/pip-checker



    3 FILLING IN THE APPLICATION FORMS


    We have a very comprehensive MEA guide to filling in the PIP application forms
    The MEA guide goes through ALL the PIP questions and how to answer them in relation to ME/CFS
    It also emphasises some of the key points that we have been discussing with the DWP in relation to PIP - eg that you are able to carry out the activities being assessed in a way that is reliable, repeatable, safe to yourself and others, and carried out in a timely manner

    People have found this guide to be very successful in relation to obtaining this new benefit

    MEA guide to PIP and other DWP benefits:
    http://www.meassociation.org.uk/shop/benefits-leaflets/


    4 ATTENDING A MEDICAL ASSESSMENT

    The CAB have a very useful guide to all aspects of the medical assessment with Atos, Capita or Maximus:
    https://www.citizensadvice.org.uk/b...p-with-your-esa-claim/esa-medical-assessment/

    If you are unable to travel to an assessment centre, the medical assessment can be carried out out in your home.
    Contact the assessment centre, explain your situation, and obtain written support from your GP if there is a reluctance to do a home assessment.

    Please note that this assessment is not carried out by the DWP - the report on your condition is then sent to the Decision Maker at the DWP


    5 RECONSIDERATION PROCESS

    If your application has been refused there is an initial mandatory reconsideration process

    6 GOING TO APPEAL

    In relation to an appeal, there are several things people can do to increase the chance of winning an appeal. These include:

    a Obtaining good supportive (written) medical evidence to support your case. In relation to PIP, this can come from people involved with your care (eg a care or social worker if one is involved) and any health professional who is involved with your care (eg OT, physio, nurse) in addition to your GP and/or consultant
    b Turning up in person at the appeal
    c Getting feedback from people with ME/CFS who have been through the appeal process - you could do this by using MEA Facebook where we have over 6,000 regular members who are always willing to pass on this sort of practical feedback

    7 USEFUL VIDEOS

    In addition, this is a useful source of information on preparing for an appeal from the MInistry of Justice:
    http://hmctsformfinder.justice.gov.uk/courtfinder/forms/sscs001a-eng.pdf

    This video, made by the Ministry of Justice with an introduction by Dr Jane Rayner, Senior Medical Adviser, First Tier Tribunal. Dr Rayner is a very kind and helpful doctor whom I have met at the House of Lords, is also useful - although it refers to ESA:


    Minutes for meeting at House of Lords with Dr Rayner:
    http://www.meassociation.org.uk/201...-me-group-minutes-of-meeting-26-january-2011/

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
     
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