1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The Pathway to Prevention (P2P) for ME/CFS: A Dangerous Process
Gabby Klein gives an overview of the P2P process, shedding light on the pitfalls with advice as to what we can do in protest ...
Discuss the article on the Forums.

Physicians/Clinics providing IV saline on site

Discussion in 'ME/CFS Doctors' started by cherlyn, May 13, 2010.

  1. cherlyn

    cherlyn

    Messages:
    15
    Likes:
    2
    My teen son had a couple of infusions of IV saline at one point and it is the only thing that has provided significant relief, albeit very short-lived. Ever since that we have wanted to experiment further with this but the cost was prohibitive as the only choice was via the ER or a home nursing provider. I know that there are some physicians and clinics that do IVs on site and would appreciate some input as to such places that you know about that will do this. I also want to see a CFS specialist with reference to my son's overall status and treatment plan, but if we're going to make such a trip I want it to be a place where they do IVs on site so that we can experiment with that while we are there. His fatigue and orthostatic intolerance are quite debilitating and I am desperate to try to find some "pieces" to improve the quality of his life and allow him to get a formal education.

    Thanks so much for all input on this!
     
    beaker and Allyson like this.
  2. Allyson

    Allyson *****

    Messages:
    1,684
    Likes:
    670
    Australia, Melbourne
    yes i am keen to follow uup on this tretment too ifa nayone has any info please that would be great.
    thanks in advance
     
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,249
    Likes:
    6,299
    Albuquerque
    Your doctor can refer you directly to a hospital IV clinic and bypass the ER. This is what my autonomic specialist did. He left standing orders for patients to get saline IV's.

    Sushi
     
    Valentijn, merylg and Tristen like this.
  4. beaker

    beaker CFS/ME 1986

    Messages:
    427
    Likes:
    655
    USA
    The main problem I have run into isn't the dr. or the clinics. It's insurance coverage. Mine won't pay.
    I get some relief from fluids too. But insurance won't cover it.
    Maybe someone has a dx code they have been able to use successfully.

    Irony of it. I can get cases of the stuff for my cat w/ CRF, along with needles and inexpensively.
    If I had a cath in, I could give myself. Cats are subQ. I can't do my own vein w/just a needle. And believe me I've thought about it.
    The nursing fees, admin fees, etc... are what drive it up at clinic or dr. office.
     
    Tristen likes this.
  5. Marianarchy

    Marianarchy

    Messages:
    40
    Likes:
    27
    Your doctor can write an RX to get the IV placed and you can get the fluids at home. I don't have insurance. My doc wrote a standing order for me to get an IV cath inserted. Walgreens Home Infusion does this for $40.00.
     
    beaker and Tristen like this.
  6. joyce.swing

    joyce.swing elmtree

    Messages:
    8
    Likes:
    12
    Oakland, CA
    I have the same problem.
    It costs mega bucks to get IV fluids that cost virtually nothing to produce. Hate it.
    I have medicare insurance, which will cover if there is something in the fluids besides normal saline.
    So, I would suggest getting your doctor to give you something - multivits or B12 or something.
    I havent managed to get that, but maybe you can :)
     
    beaker likes this.
  7. beaker

    beaker CFS/ME 1986

    Messages:
    427
    Likes:
    655
    USA
    medicare here too. I hadn't thought about the vits. They never did anything for me IV, but if that will get me fluids.
    Not sure my dr. will go for it. But never hurts to ask ?
    Thanks for the idea.
     
  8. lnester7

    lnester7 Seven

    Messages:
    1,260
    Likes:
    1,162
    USA
    I LOVE IVs they are the best for me too. Cannot get it easy either. Pedylite is the best next thing and I do everytime I feel coming or have a crash (one whole bottle per day).
     
    ahimsa likes this.

See more popular forum discussions.

Share This Page