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Physical activity intensity but not sedentary activity is reduced in CFS (Newton, 11)

Discussion in 'Latest ME/CFS Research' started by Dolphin, Mar 19, 2011.

  1. peggy-sue


    PhoenixDown said:
    What's the difference between depression & idiopathic fatigue? There's no test for depression so...​
    There is a test for depression.
    It's called the dexamethasone supressor test. It's rather unpleasant, so questionnaires are normally used instead.
  2. lnester7

    lnester7 Seven

    I Am convinced that the exercise intolerance is a symptom of something wrong like in my case It was the OI. All I know is that I had exercise intolerance, I have been trying EVERYTHING for exercise for a year (check my blog). Slow, laying down, and I crash over and over again. I treat OI (florinef) and 2 days later I could lift weights and exercise for a full hour with no PEM and I have kept going. I am back to work full time 40 hours. Go on family outings.....

    If the EI was like a permanent condition or something else, is impossible that I had gotten better over night without having to build up. This just doesn't make sense that I can go on and not crash. I have not push over one hour because I am afraid to push my luck, but I feel I could keep going if I wanted to.

    My theory: I think those who build up exercise are treating the OI (indirectly) and maybe that is why overtime they overcome and get better.
  3. WillowJ

    WillowJ Senior Member

    WA, USA
    can't recall. most likely is from my Google notices or someone posted it on Twitter. I would think I'd have credited the source if it was Twitter, unless I'd forgotten it already.

    hmm, there was a synopsis at that link previously, but I see now that it does say full text no longer available. That's too bad.
  4. PhoenixDown

    PhoenixDown Senior Member

    "The dexamethasone suppression test is designed to diagnose and differentiate among the various types of Cushing's syndrome and other hypercortisol states.[1]
    It has also been used in the research of depression.[2] "

    Do you not think those cases of "depression" were misdiagnoses?
  5. Hope123

    Hope123 Senior Member

    I am glad you are feeling better and able to go back to work and do other things but one thing I want to bring up is that Julia Newton, an ME/CFS researcher in the UK, suspects that up to 30% of ME/CFS cases might be primarily orthostatic intolerance misdiagnosed as OI. Now, I don't know your medical history (for example, do you feel like you have or had the flu constantly, especially with physical activity?) but she does have experience with people who have similar histories to you own.

    The caveats here are

    1) there are people who have both ME/CFS and OI and treatment of their OI might help relieve some of their symptoms yet they still will have other symptoms, including PEM

    2) even people with primary OI might not respond to the treatments that are available but some respond very well
  6. lnester7

    lnester7 Seven

    I used to get Flue like but not as bad. It all went basically away since i started imunovir+equillibrant. At least one symptom I don't have to deal with anymore. I have a CFS/ME profile. Viral reactivation, Low NK cell, Low Tcell, high Bcell, IL2b high, IL10 high, TNFRq and II low. So unregulated Inmune system and I think my OI is extra. But I suspect having OI from early in life.

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