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Patient Experience: "What Bronllys taught me about pacing."
In 2012, Maya, who had tried to cope with ME/CFS on her own for many years, attended a pain management centre in Wales, U.K., and is now able to achieve more through pacing and acceptance, than she had been able to before the course...
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Photographs of CFS

Discussion in 'General ME/CFS News' started by Andrew, May 22, 2013.

  1. jimells

    jimells Senior Member

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    northern Maine
    The photos and posters are great. But posting them on Facebook might not be such a good idea. My understanding is they own everything posted on Facebook. Only one of many reasons I refuse to have anything to do with Facebook.
  2. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    Visual feedback doesn't register with most people. I used to have such bad OI that it was very difficult to walk. At one doctor's office I used to go to, the staff there was very tuned into this type of thing. I only had to walk about 4 feet before two of them would rush over to hold me by my arms and steady me. And this was not an office of a CFS doctor. This was just regular staff who happened to be alert. But most people are oblivious to this kind of thing.

    Another example is where I used to work. The final year I was working everybody told me I looked just fine. But one woman came to my desk and was very concerned. I asked her how she knew I was sick. She told me it was obvious from the way I walk.
  3. Nielk

    Nielk

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    Queens, NY
    If someone says to you "but, you don't LOOK sick", I think that we should reply "well but, you don't LOOK stupid, either"!
    Lala and GracieJ like this.
  4. lnester7

    lnester7 Seven

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    USA
    OMGGGGGGGG this was priceless:lol: I am gonna have to use this!!!!
  5. LaurelW

    LaurelW Senior Member

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    Utah
    There was an article about CFS on the front page of our local paper two years ago--
    http://www.deseretnews.com/article/...bone-crushing-fatigue-pain-for-many.html?pg=1

    Among the pictures is a close-up of my face that says pretty well how exhausted I was. I look pretty different now after being on Ampligen for two years.

    I have to wonder at Beth Unger saying they wanted to put a positive spin on it and that's why the cheery pictures. WTF!! There is nothing whatsoever cheery about this illness.
    GracieJ and Nielk like this.
  6. Seewell

    Seewell Senior Member

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    Dont know if this is any good to you.(You could put more suffering in it,with some added text)

    [​IMG]
  7. Living Dead

    Living Dead

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    That was the image used for an article in Norway's national internet newspaper a few days ago. It was on the front page for several days. http://p3.no/dokumentar/statist-i-livet/
  8. Shell

    Shell Senior Member

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    England
    Here's a couple I made.
    Face of ME.png ME.png

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