Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Phoenix Rising YouTube Video Thread

Discussion in 'Action Alerts and Advocacy' started by starryeyes, Jan 22, 2010.

  1. JustJack

    JustJack put on yer dancin' shoes

    Sacramento CA
    Me in the beginning in the wheelchair

    Daer PR friends,

    I don't post alot, but that is me, in the very beginning of the video.
    I am so happy to be in it, teej and all did such an amazing job, so beautiful
    haunting and sad.

    I wish I was on the other side of the window, out in the world again with a
    life, friends and a job that I looked forward to...

    This illness has robbed all that. I feel blessed to be able to come to the forum
    and see and feel others like me, it is one of the things that keeps me going
    right now. So many smart, passionate people.

    Thanks to you all,
  2. gracenote

    gracenote All shall be well . . .

    Santa Rosa, CA
    Another friend just sent me this:

    I won't "slap her around" but it is good to know that she "gets it."
  3. starryeyes

    starryeyes Senior Member

    Bay Area, California
    Shelley that is very cool, thank you so much for sharing those comments. I really appreciate you sharing those! It's great to feel that we make a difference.

    Frickly, that's really great you got such positive feedback. It's very common for PWC to have reactivated EBV all the time.

    JJ thank you for being in it and it's great to hear from you.

    Gracenote.. lol!! She sounds like a good person.

    We changed the scenery in both of the looking out of the window photos so that they look like they're in apartments on the 2nd floor. lol
  4. hiddenlives

    hiddenlives Guest

    Thank you for this! I first saw it when surfing tags on Wordpress yesterday and was too overcome to watch it all. Today I did. Today I posted it to my blog. http://mycfslife.wordpress.com As I said there, there was a time I sought out a local support group just because I needed to see their faces. Thank you for helping me and countless others to do that.
  5. Dreambirdie

    Dreambirdie work in progress

    N. California
    Hi Starry--

    FYI: I just sent the video to Rosie O'Donnell, via her website. I hope she gets it.
  6. starryeyes

    starryeyes Senior Member

    Bay Area, California
    Thank you Dreambirdie and hiddenlives thanks for your sweet appreciation.

    Welcome to the forum hiddenlives! :balloons:

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