1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Phoenix Rising YouTube Video Thread

Discussion in 'Action Alerts and Advocacy' started by starryeyes, Jan 22, 2010.

  1. Jody

    Jody Senior Member

    Messages:
    3,954
    Likes:
    453
    Canada
    Cort,

    I start tearing up every time about half way through. The phoenix superimposed on the woman's face somewhere in the middle of the video causes me to well up and ... rise up within. By the end of the video I have tears coursing freely down my face. And then I see your picture at the very end and each time, it causes me to smile through the tears. :Retro smile:
  2. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,969
    Likes:
    3,020
    N. California
    I know, Jody. I SO MUCH appreciate Cort and this forum, and all the effort he put into making it happen.

    But it makes me weepy any way. I am such a marshmallow sometimes. :Retro tongue:
  3. fds66

    fds66 Senior Member

    Messages:
    225
    Likes:
    2
    Wow - can't believe I've only just found this.

    Wonderful video and wonderful song. Thank you everyone for all your hard work. It did bring tears to my eyes.
  4. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    53
    TERRIFIC JOB EVERYONE!!!

    Great vid!!!
    :victory:
  5. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    We weren't expecting to make a tear-jerker. Thanks for your nice Reviews Cort, fds, Jody, Koan and All.

    Hopefully this Phoenix Rising video will affect the masses and help get funding and support for ME/CFS.

    :hug:

    teej
  6. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    432
    Raleigh, NC
    When I saw Jody's face I just started blabbing - I don't know why - I don't want to know why - I just did. :)))

    Well, you made a tearjerker teej and a very good one! You must have experience in this area?

    Hey, check this out - we just got an easy way to share links with Facebook, Wordpress - all those types of sites. Look at the top of the page on the left below where it say Reply to Thread - you can share this baby immediately.

    In the middle of that Jody's face seemed so solemn and expressive - really got me going.
  7. cinderkeys

    cinderkeys

    Messages:
    37
    Likes:
    0
    I posted to the Whittemore Peterson Institute's wall on Facebook this morning. :)
  8. jackie

    jackie Senior Member

    Messages:
    591
    Likes:
    4
    i can't remember how to link ANYTHING (no matter how many times I'm told how to do it!)...but the video showed up on my FB newsfeed (since I'm a "fan" of wpi)...and all i had to do was "share" it with myself on my FB page....couldn't have been easier for a dope like me!

    (AND I've had several responses! wow! just WOW!)

    I wrote a little announcement about may12 awareness day approaching etc. ("stole" some informational text from r.e.s.c.i.n.d....bit of the history of why may12...will add that later as well as anything i can think of, as the date nears.) and it all will tie in for my little tiny stab at advocacy.

    I put up info re me/cfs on the page about me, when i started my fb a few months ago (the "deal" i made with myself when i let my kids begin a page for me, was that it would always reflect my journey with me/cfs.) figured eventually somebody might take a look - for the sake of curiousity...and they have!

    Teej, cort, everybody...i have a feeling that this video is going to be bigger than you realise. One of the "commenters" on my page (after watching the video) was that he had tried for years to mentally block out the pain...and in doing so nearly DIED three times in the past five years! this was written by a person i haven't spoken to in nearly 20 years...and had no idea of his situation. shocking!

    thanks again...for the monumental efforts! jackie:cool:
  9. Frickly

    Frickly Senior Member

    Messages:
    1,046
    Likes:
    34
    Texas
    I hope your all proud of yourselves! That video made my mom cry! :)
  10. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,969
    Likes:
    3,020
    N. California
    Yeah Frickly, we're all teary eyed from it, which means it really hits the mark.
  11. Finch

    Finch Down With the Sickness

    Messages:
    326
    Likes:
    7
    :tear:Yes - I checked, and it's the "Rise like a Phoenix" part that gets me each and every time!

    I think that's the dream we all share.

    Cort - you named this place so well!
  12. Frickly

    Frickly Senior Member

    Messages:
    1,046
    Likes:
    34
    Texas
    I think it was the wheel chair and the sign saying this is our secret wish. I think that needs to go on billboard for CFS awareness.
  13. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    That is amazing jackie. How incredible.
  14. silicon

    silicon Senior Member

    Messages:
    148
    Likes:
    72
    an awesome job...so very moving, and haunting
  15. cinderkeys

    cinderkeys

    Messages:
    37
    Likes:
    0
    That is one of my very favorite parts of the video. Exactly what I wanted to get across, and the image gives power to the words.
  16. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,969
    Likes:
    3,020
    N. California
    Yeah, that image really gets the point across. I also thought the line about if I wanted to, I could shake the yuppie flu--with the image of a man so seriously ill--was a powerful (and devastating) image as well.

    ALL the images of people in various stages of CFS were essential for this story. Some of us are sicker, some of us are more functional, but in spite of the fact that we might "look fine," we are all struggling. We have all been shamed and marginalized for having this "fake" illness. And our story comes through so well with this video.

    I've watched it 20 times already, and feel moved every time I do.
  17. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    Thanks for your thoughts. The gal in the wheelchair is me on a good day. It's funny because in the past I've joked that I'm the Poster Child for CFS.

    Before I got that wheelchair I used to have to crawl from my inflatable bed on the floor to the bathroom and kitchen for days when I had pushed too much because my pain gets so intense in my legs and ankles I cannot bear my own weight. I inherited my grandmother's wheelchair when she died a few years ago and I've used it when needed ever since.

    That wheelchair is a blessing but I hate being in so much pain I can't even stand or walk on my own two feet. I'm now trying very hard not to push through my symptoms which means I'm bedridden 95% of the time, and I use a cane when I walk anywhere but I haven't been needing the wheelchair much since I've stopped pushing myself like I once did. My goal is to try to stay out of it but it's nice to know it's there when I need it.
  18. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,969
    Likes:
    3,020
    N. California
    Wow, teej, I am so sorry that you are in so much pain. :(:(:(

    I feel for you, and want to give you a big hug :(:hug:
  19. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    :hug: Thank you Dreambirdie.
  20. vdt33

    vdt33

    Messages:
    83
    Likes:
    7
    Texas
    I'm giving you a big hug too and a thank you for making such a powerful video!!

    :thumbsup: :victory:

    :hug:

See more popular forum discussions.

Share This Page